Semi-retired surveyor Alex Wilson from Edinburgh is ready to dance his socks off for people with Huntington’s disease – hot on the heels of completing his first London Marathon and raising vital funds to help ensure families have the specialist support they need. The 59-year-old lost his much-loved dad to
Dear Huntington’s Disease Community, We are reaching out to provide an important update about the topline results from our Phase 3 study, PROOF-HD. For those who aren’t familiar with the study, the objective was to evaluate the efficacy and safety of the investigational drug pridopidine (a 45 mg oral capsule
KeyStore has stepped forward in support of families living with an incurable and devastating disease by joining a major charity event as its first corporate song sponsor. It comes as we prepare to take over George Square in Glasgow next month with its Dance 100 challenge to raise funds and
Meet our first ever Dance 100 headline sponsors – Benson Wood & Co. The Lanarkshire-based chartered accountancy firm is teaming up with Scottish Huntington’s Association and Huntington’s families to make this year’s event bigger and better than ever. We’re expecting hundreds of people from across Scotland to join us at George
Date: Sunday 14 May Location: George Square, Glasgow Time: Check in opens 11.30am Challenge: Dance for 100-songs back-to-back. All dancing abilities welcome from dad dancers to pro dancers! Entry fee: £5 registration fee to be paid as the first donation on your JustGiving page! Minimum sponsorship: There is no minimum
‘Bionic man’ Hugh Heath from Dunfermline, Fife – who has two metal replacement knees – is set to climb to the top of a 100-foot-tall crane for a high-speed zipwire along and across the River Clyde to help families with Huntington’s disease. The daredevil experience is the latest in a
Westerleigh Group has rounded off its year-long charity partnership by increasing its total given to more than £20,000. A final cheque for £11,000 was presented at West Lothian Crematorium to round off a year of fundraising by the UK’s largest independent owner and operator of crematoria and cemeteries, which includes
Bank of Scotland Foundation has awarded £135,920 to Scottish Huntington’s Association in support of our work with young people growing up in families impacted by Huntington’s disease. The funding is a share of nearly £1.5 million being distributed amongst 12 charities as part of the foundation’s Change programme. The Scottish
In this second and final piece from John, he focuses on his role as a carer for his wife Lisa. He tells us about the challenges he faces each day, including how feelings of fear, self-doubt and loss affect his physical and mental wellbeing. Read part one. “A tiny bit
John’s wife Lisa is in the later stages of Huntington’s disease. Together for more than 25 years, John has supported Lisa through the loss of her father and her sister and is now her full-time carer while also working from home. Keen to raise awareness about the realities of Huntington’s
