“I ran for my dad, he was funny, fun-loving, generous, wise, loving and loved and we all miss him.” “I ran for my mum and for my family. And I ran so the wonderful people at Scottish Huntington’s Association can continue to support families living with Huntington’s disease. “But most
Mum-of-four Kim Herkes, from Edinburgh, is opening up her ghostly garden on the spookiest night of the year – to raise money in support of families affected by Huntington’s disease, a devastating and incurable condition. Kim (35) and her family – husband Colin (39) and sons Aaron (17), Jayden (14),
We thank the intrepid team from West Lothian Crematorium who raised more than £1000 by taking part in the Edinburgh Kiltwalk. The work colleagues trekked over 13 miles through the streets of the capital, starting and finishing at Murrayfield Stadium. West Lothian Crematorium is part of Westerleigh Group, the
Registration is now open for the charity’s Family Gathering on Saturday 12 November at the Macdonald Inchrya Hotel and Spa in Polmont. It’s been nearly three years since SHA was last able to bring the HD community together in this way so the get-together will be less formal than previous
Schoolboy Aidan Macgruer, from Thurso, has smashed a 516 mile bike ride in support of families affected by Huntington’s disease, a rare and incurable condition with devastating symptoms. Back in January 2022 the eight year old challenged himself to complete a virtual North Coast 500 by cycling through Thurso and
HD Moves is coming – and #TeamSHA is getting ready to get out there in communities all over Scotland. One of the first to sign up for our new challenge is Margaret Moncrieff, a family member and long-standing supporter of SHA’s work from Renfrewshire. In October, Margaret will gather a
The 19-year-old from Edinburgh, who is studying a radio and podcasting course at college, is sharing her experiences to provide peer support to other young people and raise awareness about Huntington’s disease. “My mum Lisa was diagnosed with Huntington’s disease when I was about 13 – I’d never heard of
Just over ten years after braving a skydive in support of Scottish Huntington’s Association, Rhona Beaton decided it was time to take her fundraising to new heights. So the 38 year old took to the skies again, this time strapped to a 1940s Boeing Stearman biplane as it carried out
Full time carer Taylor Graham is determined to focus on the funny side of life – despite knowing that he is at 50/50 risk of having inherited the faulty gene that causes Huntington’s disease. The 23-year-old has put his college ambitions on hold to look after his dad Sean who
Scottish Huntington’s Association is extending its bursary scheme to help young people from families impacted by Huntington’s disease to reach their potential in education, training and employment. It follows a successful pilot in 2021/22 during which bursaries were awarded to 33 young people aged between 16 and 25 who access
