Scottish Huntington’s Association Trustee Dina De Sousa, who is facing the onset of Huntington’s disease, is marking the start of Huntington’s Disease Awareness Month by colouring her hair blue and purple, the colours chosen to represent the global HD community. Dina (58), a retired university researcher and mum of two,
“If you thought that unbreakable family curses only happened in fairy tales, think again.” The words of Melanie Pearson, author of ‘Somebody Up There Likes Me: Living With The Threat of Huntington’s Disease’ and the first guest speaker in a new series of Family Voices webinars hosted by the HD
Today we meet Logan Straub who has inspired his employers and colleagues to help families living with Huntington’s disease. The 20-year-old apprentice from Falkirk spoke to the workforce at John Jenkins and Son Steel Fabricators about having Huntington’s disease in his family. They were so moved by Logan’s experiences that
Scottish Huntington’s Association charity partner Westerleigh Group is opening the chapel doors at its crematoria to bring families and friends together to celebrate Mothering Sunday on 27 March. For those unable to attend in person, or who may still be apprehensive because of the pandemic, a specially-recorded Service of Remembrance will
Westerleigh Group has named Scottish Huntington’s Association as its corporate charity partner in Scotland for 2022, kick-starting its support with a £10,000 donation. As the UK’s largest owner and operator of crematoria and cemeteries, Westerleigh Group has 36 sites in England, Scotland, and Wales, all set within landscaped gardens of
Congratulations to brrr-illiant Scottish Huntington’s Association staff member Paula Hepburn and her sister Jacqui who braved wind, snow and sleet to do ‘a dip a day for SHA’ every morning in freezing waters near Aberdeen to support of families impacted by Huntington’s disease. The hardy duo took on the month-long
The eight-year old has embarked on an awesome challenge for 2022 – a 500 mile cycle to raise £500 in support of families impacted by Huntington’s disease. Since New Year, Aidan has powered his way well past the 40 mile mark already. Not even coronavirus can stop this cycling superstar –
Ionis announce plans for new Roche Phase 2 tominersen trialIonis Pharmaceuticals has announced that its partner Roche is designing a new Phase 2 trial to evaluate tominersen in Huntington’s disease.The statement – which you can read in full at – comes after dosing with the drug was halted last year
Motion is most supported call to action in history of Scottish Parliament A call to expand specialist services for families impacted by Huntington’s disease (HD) has received unprecedented cross party support from Scotland’s parliamentarians. A motion calling for more HD specialist services – tabled by Labour Deputy Leader and Shadow
Scottish Huntington’s Association, the only charity in Scotland exclusively dedicated to supporting people whose lives are impacted by Huntington’s disease, has appointed two new members to its Board of Trustees. Professor Lorna Milne, Master of the United College and Deputy Principal at the University of St Andrews, and Gillian McNab,
