Just over ten years after braving a skydive in support of Scottish Huntington’s Association, Rhona Beaton decided it was time to take her fundraising to new heights. So the 38 year old took to the skies again, this time strapped to a 1940s Boeing Stearman biplane as it carried out
Full time carer Taylor Graham is determined to focus on the funny side of life – despite knowing that he is at 50/50 risk of having inherited the faulty gene that causes Huntington’s disease. The 23-year-old has put his college ambitions on hold to look after his dad Sean who
Scottish Huntington’s Association is extending its bursary scheme to help young people from families impacted by Huntington’s disease to reach their potential in education, training and employment. It follows a successful pilot in 2021/22 during which bursaries were awarded to 33 young people aged between 16 and 25 who access
Families in Fife whose lives are impacted by Huntington’s disease are re- opening their pop-up shop later this month to raise vital funds. The shop is run by volunteers, carers and Scottish Huntington’s Association HD Specialist Jillian Foster, who is now appealing for donations of bric-a-brac, household goods and tombola
Sarah Mitchell, from Perthshire, has joined our team of Youth Ambassadors to help other young people and raise awareness about how Huntington’s disease impacts families. The 18-year-old is taking on the volunteer role after losing her much-loved mum Natalie to the disease 18 months ago. Coming to terms with her
Young people growing up in families impacted by Huntington’s disease need age-appropriate tools and information to help them cope – while parents are unsure about what to say and when, a recent study has found. University of Aberdeen researchers have been gathering evidence over two decades to help inform the
Teenage musical theatre actor William Hillhouse has vowed to sing and dance his way through life – despite knowing he’s at risk of developing the same incurable disease as his dad. The super talented 16-year-old singer, actor and dancer from East Kilbride has appeared in pantos with David ‘The Hoff’
Registration is now open for the second webinar in our Family Voices series, brought to you by the Huntington’s Disease Alliance UK and Ireland. In this episode, we will be joined by Sarah Winckless MBE, a British rower and former star of Team GB. The online event will take place on
“My lovely grandad Bob isn’t able to walk or talk now but his eyes lit up when I showed him the photos of us fundraising for Scottish Huntington’s Association. Then he lifted his arm to give everyone a wee wave of thanks.” The words of student Heather Train (24), from
They’ve conquered the UK’s three highest mountains in one weekend – and now the unstoppable Kirrie Girls are limbering up to take on a five-hour dance challenge in support of families with Huntington’s disease (HD). Jennifer Paton, Gill Ferguson, Dianne Scott, and mum and daughter Susan and Claire Dyce, from
