Scottish Huntington’s Association is governed by a Board of voluntary Trustees, who have a collective legal responsibility for the direction and performance of the charity.
They are required to act with appropriate care and diligence in the interests of the organisation, and to comply with duties such as financial and other reporting to the Scottish Charity Regulator (OSCR), as set out in Section 66 of the 2005 Charities and Trustee Investment (Scotland) Act.
Our Trustees contribute a wealth of knowledge and skills to the organisation including expertise in youth work, finance, education, healthcare, research, governance, business, operations and strategy, and our constitution requires that the Chair and at least 50% of Trustees are appointed from families whose lives are impacted by Huntington’s disease.
This governance structure ensures that SHA’s mission and values – the principles upon which the charity was founded by families – underpin all our work and meet the standards expected by donors, volunteers, partner organisations and the community we serve.
Owner, community engagement consultancy
Chartered Accountant & Financial Controller
Self-employed estate agency professional
Consultant Psychiatrist and
Lead HD Clinician, NHS Lanarkshire
Research Assistant (Retired)
Senior Lecturer and Associate Dean for Internationalisation (University of Stirling)
Palliative care nurse
Master of the United College and
Deputy Principal, University of St Andrews
Regulatory Affairs Associate Director (Retired)