Our Board of Trustees

Scottish Huntington’s Association is governed by a Board of voluntary Trustees, who have a collective legal responsibility for the direction and performance of the charity.


They are required to act with appropriate care and diligence in the interests of the organisation, and to comply with duties such as financial and other reporting to the Scottish Charity Regulator (OSCR), as set out in Section 66 of the 2005 Charities and Trustee Investment (Scotland) Act.


Our Trustees contribute a wealth of knowledge and skills to the organisation including expertise in youth work, finance, education, healthcare, research, governance, business, operations and strategy, and our constitution requires that the Chair and at least 50% of Trustees are appointed from families whose lives are impacted by Huntington’s disease.


This governance structure ensures that SHA’s mission and values – the principles upon which the charity was founded by families – underpin all our work and meet the standards expected by donors, volunteers, partner organisations and the community we serve.


More information about the roles and responsibilities of charity trustees.

Aarran Air

Family Member
Chartered Accountant & Financial Controller

Derek Brady

Family Member
Semi-retired procurement and supply chain professional

Professor Louise McCabe

Senior Lecturer and Associate Dean for Internationalisation (University of Stirling)

Gillian McNab

Family Member
Palliative care nurse

Professor Lorna Milne

Master of the United College and
Deputy Principal, University of St Andrews

Margaret Moncrieff

Family Member
Chartered Accountant (Semi-retired)

Dr Marie Short MBE

Family Member
Regulatory Affairs Associate Director (Retired)

Dr Tim Soane

Clinical Lead for Huntington's disease at Forth Valley Health Board

To find out more about how you can support the work of Scottish Huntington's Association as a member of our Board of Trustees, please contact us at sha-admin@hdscotland.org.