Scottish Huntington’s Association has announced a new fund to support the impact of research into ways to improve the lives of families impacted by Huntington’s disease in Scotland and beyond. The charity’s Impact and Engagement Fund has been made possible through a generous legacy donation in support of the charity’s
Lauren Boag from Insch, Aberdeenshire, has been shortlisted for this year’s Volunteer of the Year at the Scottish Charity Awards. The 37-year-old volunteer fundraiser has raised over £35,000 for Scottish Huntington’s Association so far – an achievement made even more remarkable given the demands of a busy home life and
Scottish Huntington’s Association has been shortlisted for a prestigious award in recognition of our work with young people growing up in Huntington’s families. The National Youth Work Awards, hosted by YouthLink Scotland, celebrate the dedication and impact of youth workers and organisations across Scotland, highlighting their invaluable contribution to the
We are hugely grateful to Peter Yardley who is raising money in support of Huntington’s families with his new book through the sales of his book ‘An Anthology of Short Stories, Poems and Other Things.’ Peter’s late sister Myra had Huntington’s disease and his niece Gillian McNab – a Scottish
A mum of three from Lanark is ready to rock and raise funds in support of families – including her own – that are impacted by Huntington’s disease. Gillian McNab (54) has inspired four top local bands to join forces for SHA Rocks, a night of live music in aid
Drug company Prilenia has announced today, Tuesday 12 March, that it is applying for market authorisation from the European Medicines Agency (EMA) for the drug Pridopidine for the treatment of Huntington’s disease.Marketing authorisation is the process of reviewing and assessing the evidence to support a medicinal product in relation to
Dear Huntington’s Disease Community, We recently have had meetings with regulatory authorities in the European Union about next steps for our HD program. We are pleased to let you know that after positive and constructive feedback, we plan to submit a Marketing Authorization Application (MAA) for pridopidine for the treatment
ONE of Scotland’s fittest footballers has opened up on knowing he will one day develop the rare incurable genetic brain condition Huntington’s disease – and his refusal to let it stop him living a full and healthy life for as long as possible. Cowdenbeath captain Robbie McNab, 27, discovered he
This year’s Family Gathering and AGM will take place on Saturday 4 November at DoubleTree by Hilton Dunblane Hydro, Perth Road, Dunblane. It is open to everyone whose life is impacted by Huntington’s disease, including those who have the disease or are at risk of developing it, carers and loved
Lanarkshire accountant John Moffat has taken on a whole new counting challenge that will see him do more than 1.5 million steps for families impacted by Huntington’s disease. The 55-year-old Chief Executive Officer and colleagues at Benson Wood + Co in Bellshill have been inspired to support Scottish Huntington’s Association
