This privacy policy sets out how Scottish Huntington’s Association (SHA) uses and protects any information that you give us when you use this website or official social media pages.

SHA  is committed to ensuring that your privacy is protected. Should we ask you to provide certain information by which you can be identified when using this website or social media pages, then you can be assured that it will only be used in accordance with this privacy statement.

SHA may change this policy from time to time by updating this page. You should check this page from time to time to ensure to familiarise yourself of any changes. This policy was updated in August 2021.

What we collect

We may collect the following information:

  • First and last name
  • Contact information including email address
  • Date of birth
  • Demographic information such as postcode, communication preferences and interests about the charity’s work

What we do with the information we gather

We require this information to understand your needs and provide you with a better service, and in particular for the following reasons:

  • Internal record keeping
  • Ensuring any requested information reaches the correct address

Under Data Protection Act 2018, (DPA) and General Data Protection Regulation (EU) 2016/679 of the European Parliament and of the Council of 27 April 2016, (UK GDPR), we must have a legal reason to collect, keep and use your data. We rely on the following legal basis for processing your data:

  1. Consent – this applies if you have given permission for the processing of your personal data for the specific purposes mentioned above. You may withdraw your consent at any time by contacting us at
  1. Legitimate interest – this applies to the processing of your data in relation to activities to further SHA’s mission. Legitimate interest processing includes, for example, postal communications (such as direct marketing and fundraising requests); responding to enquiries about the services we provide; and delivering purchases or merchandise such as T-shirts; and processing credit card payments.


We are committed to ensuring that your information is secure. In order to prevent unauthorised access or disclosure, we have put in place suitable physical, electronic and managerial procedures to safeguard and secure the information we collect online.

How we use cookies

A cookie is a small file which asks permission to be placed on your computer’s hard drive. Once you agree, the file is added and the cookie helps analyse web traffic or lets you know when you visit a particular site. Cookies allow web applications to respond to you as an individual. The web application can tailor its operations to your needs, likes and dislikes by gathering and remembering information about your preferences.

We use traffic log cookies to identify which pages are being used. This helps us analyse data about webpage traffic and improve our website in order to tailor it to your needs. We only use this information for statistical analysis purposes then the data is removed from the system.

Overall, cookies help us provide you with a better website by enabling us to monitor which pages you find useful and which you do not. A cookie in no way gives us access to your computer or any information about you, other than the data you choose to share with us.

You can choose to accept or decline cookies. Most web browsers automatically accept cookies, but you can usually modify your browser setting to decline cookies if you prefer. This may prevent you from taking full advantage of the website.

Google Analytics

Google Analytics is a piece of software that we use to record data about our visitors. This tracking allows up to understand what features of the website are successful and to make changes to them when required.

If you are unhappy about the data being used in this way then Click here to opt-out of Google Analytics.

Links to other websites

Our website may contain links to other websites of interest. However, once you have used these links to leave our site, you should note that we do not have any control over that other website. Therefore, we cannot be responsible for the protection and privacy of any information which you provide whilst visiting other sites and such sites are not governed by this privacy statement. You should exercise caution and look at the privacy statement applicable to the website in question.

Controlling your personal information

You may choose to restrict the collection or use of your personal information if you have previously agreed to us using your personal information for direct marketing purposes; you may change your mind at any time by writing to or emailing us at

We will not sell, distribute or lease your personal information to third parties unless we have your permission or are required by law to do so. We may use your personal information to send you promotional information about the charity which we think you may find interesting if you tell us that you wish this to happen.

You may request details of personal information which we hold about you under the General Data Protection Regulations.

Scottish Huntington’s Association

Business First
Burnbrae Road

If you believe that any information we are holding on you is incorrect or incomplete, please write to or email us as soon as possible at the above address. We will promptly correct any information found to be incorrect.