“This illness splits families apart or keeps them together. There is no middle ground with it.” For Connie Daly, those powerful words from her dad helped to inspire her support for other people whose lives are also impacted by Huntington’s disease. “We’ve lost too many loved ones,” said Connie. “We
Houston accountant Margaret Moncrieff (79) has completed her 13th Walk of Hope in support of families, including her own, who are impacted by Huntington’s disease. The annual trek began with friends back in 2012 to support Scottish Huntington’s Association while increasing awareness about Huntington’s disease along the way. Over the
What a team! A huge thank you to Alan and Louise Provan of Provan Contracts in Lanarkshire for a champion bit of awareness raising about our work. As part of the company’s sponsorship of the North Motherwell 2010 Blues this season, Louise and Alan have worked with the team and
Applications for the 2024 intake to the “Huntington’s disease: an enabling approach to supporting families” online module are now open. The course, delivered in partnership with University of Stirling, is aimed at health and social care professionals working with families who are living with Huntington’s. By drawing on current global
Families in the Highlands who are living with Huntington’s disease hit Inverness city centre for a five-hour dance party to a live DJ set of 100 hits to raise awareness about the rare condition. Amongst those taking part in Dance 100 at Falcon Square on Saturday 7 September were people
Houston accountant Margaret Moncrieff (79) is taking on her 13th Walk of Hope in support of families, including her own, who are impacted by Huntington’s disease (HD). The annual trek began with friends back in 2012 to support Scottish Huntington’s Association while increasing awareness about Huntington’s disease along
This year’s Family Gathering will take place on Saturday 9 November at Apex City Quay Hotel, Dundee. This year, in recognition of our 35th anniversary, we’re also holding a celebratory dinner. This is your invitation to these events! We have lined up a superb programme of speakers and activities, and
Inverness has been chosen as the host city of a unique event in support of families with Huntington’s disease, a complex hereditary brain condition. The Scottish Huntington’s Association Dance 100 roadshow will roll into the heart of the city for the first time on Saturday 7 September for five hours
We are so proud of volunteer fundraiser Lauren Boag whose incredible support for Huntington’s families was recognised at this year’s Scottish Charity Awards. Lauren was presented with a Highly Commended certificate in the Volunteer of the Year category – one of only two special such awards announced by broadcaster Sally
Our work with children and young people has been recognised with a major national award. The YouthLink Scotland National Youth Work Awards – the ‘Oscars’ of the youth work sector – were held in Glasgow on 12 June 2024. Scottish Huntington’s Association beat stiff competition from
