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Community invited to first Family Gathering event

Registration is now open for the charity’s Family Gathering on Saturday 12 November at the Macdonald Inchrya Hotel and Spa in Polmont. It’s been nearly three years since SHA was last able to bring the HD community together in this way so the get-together will be less formal than previous

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Meet Rebecca, our new volunteer Youth Ambassador!

The 19-year-old from Edinburgh, who is studying a radio and podcasting course at college, is sharing her experiences to provide peer support to other young people and raise awareness about Huntington’s disease. “My mum Lisa was diagnosed with Huntington’s disease when I was about 13 – I’d never heard of

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