Living With Huntington's disease

Take a look at some of the experiences of people living with Huntington's Disease within Scotland and the family's which are affected by the condition.

Staccy's Story

29 year old Staccy was diagnosed with Huntington’s disease in 2011. My Huntington’s disease comes from my grandfather’s side of the family, who passed it on to my mum and then on to me.

Lisa's Story

Lisa was diagnosed with Huntington’s disease when she was 30. I only found out I had HD five years ago. It runs in my dad’s family, but he was adopted, so there are no other cases of it in the wider family, so it came as a real shock.