Huntington's Disease Specialists

 

The role of HD Specialists is to assess need, coordinate care, train, educate and advocate on behalf of HD families. They are employed through joint funding from NHS Boards, Health & Social Care Partnerships and the Scottish Huntington’s Association. Contact details for HD Specialists by NHS Board area are listed below.

NHS Board areas with dedicated HD Specialist support

NHS Ayrshire & Arran

Recruiting (Senior HD Specialist)

Recruiting (HD Specialist)

Douglas Grant Rehabilitation Centre
Ayrshire Central Hospital
Irvine
KA12 8SS
01294 322305

NHS Dumfries & Galloway
Claire White (Senior HD Specialist)
Gardenhill Primary Care Centre
Gardenhill
Castle Douglas
DG7 3EE
01387 244454/05

NHS Fife
Nicola Johns (Senior HD Specialist)

Susanna Jabbour (HD Specialist)

Whyteman’s Brae Hospital
Whyteman’s Brae
Kirkcaldy
KY1 2ND
01592 647993

NHS Grampian
Sam Buckley (Senior HD Specialist for Aberdeen City & Aberdeenshire)
Clinical Genetics Centre
Ground Floor
Ashgrove House
Foresterhill
Aberdeen
AB25 2ZA
01224 550062 / 01224 550063 / 01224 553530

Shirley Catto (HD Specialist for Moray)

Seafield Hospital

Buckie

AB56 1SF

01542 837056 

NHS Greater Glasgow & Clyde

Pauline Donaldson (Senior HD Specialist)
Sally Woolvine (Senior HD Specialist)
Emma McAnally (HD Specialist)
Gillian Robertson (HD Specialist)
Business First
Burnbrae Road
Paisley
PA1 2FB

0141 248 0308

NHS Highland
Lorraine Watson (Senior HD Specialist)
Recreation Hall Building
Raigmore Hospital
Inverness
IV2 3UJ
01463 729958

NHS Lanarkshire
Rhona Vernon Smith (Senior HD Specialist)
Claudia Lang (HD Specialist)

4th Floor
Hunter Community Health Centre
Andrew Street
East Kilbride
G74 1AB
01698 753955

NHS Lothian
Trevor Law (Senior HD Specialist)

Katharine Spence (HD Specialist)
Clinical Genetics Department
Western General Hospital
Edinburgh
EH4 2XU
0141 248 0308

NHS Tayside
Paula McFadyen (Senior HD Specialist)
Lindsay Wilson (HD Specialist)
Room 3010
East Day Home
Kings Cross Hospital
Clepington Road
Dundee
DD3 8EA
01382 424172 (Paula)
01382 424196 (Lindsay)

Areas With Partial HD Specialist Support

NHS Forth Valley
David Thomson (Lead HD Clinical Nurse Specialist)
Forth Valley Royal Hospital
Stirling Road
Larbert
FK5 4WR
01324 566230

Laura Marshall (Huntington's Disease Clinical Nurse Specialist )

Forth Valley Royal Hospital
Stirling Road
Larbert
FK5 4WR
01324 566870

Areas with no dedicated HD Specialist support

NHS Border
NHS Orkney
NHS Shetland
NHS Western Isles

For guidance in these areas please contact:
Scottish Huntington’s Association

Business First

Burnbrae Road

Paisley

PA1 2FB
0141 848 0308

sha-admin@hdscotland.org