When civil servant Liam Anderson signed up for the London Marathon in support of the Huntington’s community, he had no idea how much it would inspire his own family. The 31-year-old tried unsuccessfully for 10 years to win a ballot place in the world-famous run – then Scottish Huntington’s Association
What an amazing time was had at the 2023 Summer Camp! This year we were joined at Lagganlia Outdoor Centre near Aviemore by 45 young people from across Scotland, our Patron Sarah Winckless, Chair of Trustees Cat Martin and Chief Executive Alistair Haw. And our Youth Service team made sure
Good luck to full-time carer Taylor Graham who is returning to the Edinburgh Fringe with his new charity stand-up show in support of people with Huntington’s disease and their loved ones. This year the 25-year-old from Edinburgh will be at the Counting House (Fringe venue 170) where he will joined
The groundbreaking course ‘Huntington’s disease: an enabling approach to supporting families’ is open for applications from practitioners involved in the care and support of people and families impacted by Huntington’s disease. The short course aims to develop greater understanding of Huntington’s disease and its impact on the people and families
Thank you so much to our incredible charity partner, Lanarkshire-based accountancy firm Benson Wood & Co. Since joining forces with Scottish Huntington’s Association in April, the staff have been very busy, including by stepping forward as headline sponsor for Dance 100 and coming along on the day to raise a
This amazing shot won first prize in the Stronger Together in the HD Community competition organised jointly by International Huntington Association and European Huntington Association. The competition was open to organisations and family members across the world as part of the organisations’ shared Huntington’s Disease Awareness Month campaign
Ballroom beginner Patrishia Adams from Easterhouse entered a prestigious dance competition – then gave herself just 10 weeks to learn all the steps and raise as much money as possible for Scottish Huntington’s Association. The 42-year-old anaesthetics nurse hadn’t danced since her ballet and tap days 30 years ago. But
Good luck to our Fife Family Branch as it prepares to open its regular ‘pop-up’ shop to raise funds and increase awareness about Huntington’s disease in the local community. The shop will open its doors in Wellesley Road, Methil, from Friday 2 June until Friday 9 June, selling a wide
Dina De Sousa has stepped down as a Trustee after serving for five years on our Board. Dina (59), who inherited the faulty gene that causes the disease from her late father, is moving soon to Portugal, where she and her husband Paul both have family roots. She recently had
An Aberdeen accountant who dedicates marathon runs to his late father has raised more than £18,000 in support of families impacted by Huntington’s disease. Stuart Oag, of Cults, has spent the past two years training and fundraising for Scottish Huntington’s Association after losing his dad Les to Huntington’s disease, an
