"We’re starting to see incredible scientific discoveries that we only know about because so many families are taking part in research. It is entirely possible that there are people walking around with gene therapy in their nervous system and that one of those people is experiencing the effects in their body of the first effective treatment for Huntington’s disease."
Professor Ed Wild, Associate Director of University College London Huntington’s Disease Centre and Editor in Chief of HD Buzz
Scottish Huntington’s Association is committed to deepening and expanding its focus on supporting research at both national and international levels as outlined in Standing Tall: A Strategy for Growth 2023 – 2028.
In addition to strengthening our relationships with researchers through the work of the Research sub-committee, providing support, creating opportunities and sharing its expertise, the charity will:
The Scottish Huntington’s Association Research Sub-Group aims to raise the profile of Scottish Huntington’s Association and establish it as a partner in research through the following activities:
Chair of commitee
Trustees of the Scottish Huntington’s Association Board, including a minimum of two family members. At least one Trustee should have experience of research, either of conducting research or bring involved as a research participant.
The Research Sub-Group is a sub-group of the Board of Trustees and reports to the Board. It has delegated responsibility to take decisions and request their implementation by Scottish Huntington's Association management where its expertise is sufficient to do so with authority, or where prompt action is required. Decisions with multiple or major implications are referred to the full Board for discussion and approval. The Sub-Group does not have delegated budgetary authority.