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Praise for Fife families at anniversary bench unveiling

The second bench to mark the 30th Anniversary of Scottish Huntington’s Association (SHA) has been installed by families in Fife. 

They gathered at Bandrum Nursing Home in Saline, near Dunfermline, where they were joined by SHA HD specialists, staff from the nursing home, and local MP Douglas Chapman. 

Mr Chapman said “It was an absolute pleasure to visit Bandrum Nursing Home to help unveil a bench on behalf of the families and friends of those with Huntington’s disease. 

“It really is an unforgiving condition that puts a huge strain on families, and I am so proud of the families who have worked hard to raise funds for the bench, and the specialists from Scottish Huntington’s Association who are there for affected families and patients in their hour of need. 

“Bandrum staff are also something special and their level of care for Huntington’s patients is, as usual, quite exemplary. I hope that many people use the bench to enjoy the views over the very best West Fife countryside and that brings some tranquillity into their lives.” 

Currently, SHA supports nearly 150 people across Fife, including those who are living with symptoms of HD or have a positive gene test, carers and people living with the genetic risk.  

Today, there are 1100 people in Scotland with HD and a further 6000 people are at risk of inheriting the incurable disease from their parents, meaning HD impacts upon entire families over generations rather than on individuals alone.

Each child of a person with HD has a 50% likelihood of developing the condition.  

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