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What we do

Provide Specialist Services

Our network of HD Specialists delivers personalised support directly to families, in addition to advocating on their behalf and liaising with health and social care providers. 

support young people

Our Youth Service provides individual and group support and activities for young people who are growing up in families impacted by Huntington's disease.

Reduce financial hardship

Our Financial Wellbeing Service offers confidential advice and help for families about a range of money matters, including debt management, energy use, benefits and allowances. 

Raise care standards

The SHA-led National Care Framework for Huntington’s Disease, and its localised versions, empowers families to access appropriate care and support, regardless of where in Scotland they live

huntington's disease

Find out more about this incurable neurological disease, its complex and severe symptoms, and its devastating impact on families across the generations. 

SHA: About Us

Founded by families in 1989, the charity is driving forward specialist personalised care for everyone in Scotland whose lives are impacted by Huntington's disease.

how we work

The HD Community, and the people who make our vital work possible, lie at the heart of what we do. Our mission and our values set out our commitment to those who are involved with SHA.

News and Publications

SHA's publications include resources for young people, annual reviews and regular newsletters for families and donors. You can also catch up with the charity's latest news.