Families across UK and Ireland join forces to share experiences for new HD Alliance webinar
As part of our work to build understanding and spread the word during Huntingtonās Disease Awareness Month, we are proud to present a new webinar for families and others interested in learning more about the condition.
Delivered by the UK and Ireland Huntingtonās Disease Alliance, Huntingtonās and Me features a series of short pre-recorded interviews with family members from Scotland, England, Northern Ireland and Ireland.
Their insights and experiences offer honest, first-hand perspectives and a deeper understanding of what it means to support and live alongside someone with Huntingtonās disease.
The webinar takes place on Wednesday 20 May 2026 from 7pm to 8pm.
To register via the Huntingtonās Disease Association Website, visit https://www.hda.org.uk/events/huntingtons-and-me-family-members-talk-about-their-experiences/
Trigger warning: this webinar includes a reference to suicide.
Meet your hosts
The UK and Ireland Huntingtonās Disease Alliance is collaboration of charities that support people impacted by Huntingtonās disease. These charities work in partnership to improve care, raise awareness, and strengthen the overall support network available to families.
Scottish Huntingtonās Association āScottish Huntingtonās Association provides expert and personalised support for those impacted by Huntingtonās disease in Scotland. It ļ¬ghts tirelessly to ensure that everyone impacted by Huntingtonās disease in Scotland has access to the specialist care and support they need when they need it, regardless of where they live.
Huntingtonās Disease Association ā We improve care and support services for people with Huntingtonās disease, educate families and professionals, and champion peopleās rights across England and Wales.
Huntingtonās Disease Association of Northern Ireland ā HDANI works throughout Northern Ireland, providing support, information, advice and social connections to those living with the impact of Huntingtonās disease.
Huntingtonās Disease Association of Ireland ā HDANI works throughout Ireland, supporting you to access the health and social services you need, providing information to you and your health professionals, and championing your rights.
