Membership benefits
- Shaping the work of the charity
Members have voting rights at the charity’s Annual General Meeting (subject to eligibility, see categories of membership below). - Increased transparency
You will help to uphold the accountability of the organisation, ensuring effective governance is maintained. - Eligibility
As a member of Scottish Huntington’s Association you are eligible to become an office bearer (Chair, Treasurer or Secretary) or committee member in a local branch of the society if there is one in your area. - Access to membership content
You will receive regular email bulletins with important updates, including the appointment of Trustees and other activities of the Board; announcements; and opportunities to increase your involvement in the work of the charity. - Advocacy and representation
You may choose to help raise the voice of the Huntington’s community to increase public awareness and funding, including by sharing your own experiences with the wider public. - Creating opportunities
As an active member of our membership community, you will also be supported to deepen your involvement, for example as a volunteer fundraiser or an advocate for our work to your professional and personal networks.
Membership of Scottish Huntington’s Association is free.* Once registered as a member, your membership will continue until you notify us that you wish to cancel. To keep our records up to date, we may also contact you from time to time to ascertain whether you wish to remain a member.
Categories and qualifications of membership
Principal Member
Any person who is over 18 years of age, resides in Scotland, and has an interest in Huntington’s disease, shall be eligible to become a Principal Member of the Association with voting rights at our Annual General Meeting.
Representative Member
Any person who is over 18 years of age, resides in Scotland and represents a local authority or statutory body invited by the Board to nominate one or more representatives, shall be eligible to become a member of Scottish Huntington’s Association with voting rights for as long as they remain the representative of the body to which they are affiliated AND that body retains access to membership at the invitation of the Board (see Article 6 of the Articles of Association).
Associate Member
Any person who is:
- under 18 years of age, and/or
- not resident in Scotland, and/or
- a staff member of the Scottish Huntington’s Association,
shall be eligible to become an Associate Member of the Association with no voting rights.
In recognition of the considerable financial burdens that living with Huntington’s disease can bring, we are happy to provide membership of the Association free of charge. We also provide free membership to professionals and other supporters in recognition of their contribution to meeting the needs of the Huntington’s community.
However, if you wish to donate or set up a regular gift to help sustain our services then this will be gratefully received. Please contact our Income Generation team at fundraising@hdscotland.org for further information.
*Please note that because Scottish Huntington’s Association is a company limited by guarantee, in the very unlikely event that it should ever be wound up members would be legally liable to contribute no more than £1 each towards the costs of winding up. Details are contained in Article 6 of the Scottish Huntington’s Association Memorandum of Association.
