Huntington’s Disease Specialists
Our HD Specialists provide vital physical health, mental health, wellbeing support and care co-ordination for all adults within a Huntington’s family – whether they be symptomatic, asymptomatic, at risk or carers. They liaise with, amongst others, occupational therapists, speech therapists, physiotherapists, care homes, dieticians and community mental health teams. Additional HD Specialist support includes specialist assessment, symptom management, emotional support, help to plan for future care needs and enabling carers to build skills and resilience. Our expertise is invaluable to health and social care professionals who access training and advice from our HD Specialist teams. Most health and social care staff have no experience of Huntington’s disease at all, and so depend upon the support of our specialist teams.
Find your local HD Specialist
NHS Ayrshire & Arran
Douglas Grant Rehabilitation Centre
Ayrshire Central Hospital
Irvine
KA12 8SS
01294 322305
NHS Dumfries & Galloway
Gardenhill Primary Care Centre
Gardenhill
Castle Douglas
DG7 3EE
01387 244454
01387 244405
NHS Fife
Whyteman’s Brae Hospital
Whyteman’s Brae
Kirkcaldy
KY1 2ND
01592 647993
NHS Grampian
Clinical Genetics Centre
Ground Floor
Ashgrove House
Foresterhill
Aberdeen
AB25 2ZA
01224 550062
01224 550063
01224 553530
Seafield Hospital
Buckie
AB56 1SF
01542 837056
NHS Greater Glasgow & Clyde
Business First
Burnbrae Road
Paisley
PA1 2FB
0141 248 0308
NHS Highland
Recreation Hall Building
Raigmore Hospital
Inverness
IV2 3UJ
01463 729958
NHS Lanarkshire
4th Floor
Hunter Community Health Centre
Andrew Street
East Kilbride
G74 1AB
01698 753955
NHS Lothian
Clinical Genetics Department
Western General Hospital
Edinburgh
EH4 2XU
0141 248 0308
NHS Tayside
Room 3010
East Day Home
Kings Cross Hospital
Clepington Road
Dundee
DD3 8EA
01382 424172Â (Paula)
01382 424196Â (Lindsay)
Areas with partial HD Specialist support
NHS Forth Valley
Forth Valley Royal Hospital
Stirling Road
Larbert
FK5 4WR
01324 566230
01324 566870
All other areas
NHS Borders, NHS Orkney, NHS Shetland, NHS Western Isles
For guidance in these areas please contact:
Scottish Huntington’s Association
Business First
Burnbrae Road
Paisley
PA1 2FB
0141 848 0308
sha-admin@hdscotland.org
Clinical Leads
HD Clinical Leads are NHS employed doctors (such as psychiatrists, neurologists or geneticists) designated to providing specialist medical advice, care and treatment to people with Huntington’s. They work with Scottish Huntington’s Association staff and other health and social care colleagues to coordinate care across their local NHS Board area. They run specialist clinics supported and facilitated by our HD Specialist staff; and provide access to Huntington’s disease research programmes. In light of our expertise Scottish Huntington’s Association coordinates and chairs the national network of HD Clinical Leads.
NHS Ayrshire & Arran
Ailsa Hospital
Dalmellington Road
Ayr
KA6 6AB
01292 513028
NHS Dumfries & Galloway
Dumfries and Galloway Royal Infirmary
Cargenbridge
Dumfries
DG2 8RX
01387 241983
NHS Fife
Whyteman’s Brae Hospital
Kirkcaldy
KY1 2ND
01383 623 623
NHS Forth Valley
Forth Valley Royal Hospital
Stirling Road
Larbert
FK5 4WR
01324 566355
NHS Greater Glasgow & Clyde
Queen Elizabeth University Hospital
1345 Govan Rd
Glasgow
G51 4TF
0141 232 7591
NHS Grampian, Highland, Orkney, Shetland, Western Isles
Clinical Genetics Centre
Ashgrove House
Foresterhill
Aberdeen
AB25 2ZA
01224 552120
NHS Lanarkshire
Airbles Road Centre
45-49 AIrblies Road
Motherwell
ML1 2TP
01698 855370
NHS Lothian
Anne Rowling Regenerative Neurology Clinic
University of Edinburgh
49 Little France Crescent
Edinburgh
EH16 4SB
0131 465 9518
For out of hours support, please contact Breathing Space Scotland
Breathing Space Scotland is part of NHS 24 and provides a free, confidential helpline which is available out of normal office hours. Support is available Mon-Thurs 6pm – 2pm and at weekends from 6pm on Friday to 6am on Monday.
Breathing Space staff have an awareness of Huntington’s disease through training provided by us and they offer a friendly listening ear. Breathing Space employs skilled staff (not volunteers) who know how to listen and are experienced in supporting people with a wide range of concerns. There are equal numbers of male and female staff.
Learn more