Share your experiences and help to safeguard essential Huntington’s disease services

We need your help! Please tell us about your experiences of support provided by Scottish Huntington’s Association.

As you may already be aware, the third sector as a whole is in the midst of an increasingly difficult funding environment, while also facing rising costs. Scottish Huntington’s Association is, unfortunately, not immune to these challenges and needs to present the strongest case possible in order to secure the funding needed to deliver its HD Specialist Service, Youth Service and Financial Wellbeing Service.

By completing our 2026 impact survey, you will help us to gather the information that funders are looking for to evidence the essential nature of our services. Family members who took part in 2024/25 made a huge difference by making sure the voice of the Huntington’s community was heard loud and clear in all our income generation work.

Their feedback also inspired politicians to take our case to the parliament and governments to highlight the need for the specialist Huntington’s disease services that only we provide.

Your collective responses will be shared in negotiations with statutory bodies, reports that demonstrate impact and value for money, applications to other funding bodies, and work to create new partnerships, including in the corporate sector.

They will also help us to continue important work to build support amongst key decision makers at local and national levels, including local authorities, health boards, and the Scottish Government and Parliament.

When answering the questions, please think about what life would be like without the support received from Scottish Huntington’s Association, the services you have accessed and the difference it has made.

*The results will be independently verified by Insley Consulting, a third party and trusted partner organisation with which we have worked before.

Please complete the survey at https://www.surveymonkey.com/r/SHA26.

Thank you.