SHA Patron Sarah Winckless joins us for Family Voices

Registration is now open for the second webinar in our Family Voices series, brought to you by the Huntington’s Disease Alliance UK and Ireland. In this episode, we will be joined by Sarah Winckless MBE, a British rower and former star of Team GB. 

 The online event will take place on Zoom on Tuesday, 21 June at 7pm.

Huntington’s disease is in Sarah’s family on her mother’s side. Sarah and her family supported her mum as she lived with the disease until she passed away in 2020. During her final year of university, Sarah tested positive for the gene herself whilst her three siblings did not inherit the gene.

Although most people start showing symptoms between ages 30 and 50, Sarah is still not displaying any signs of the onset of Huntington’s disease. As Patron of the Scottish Huntington’s Association, she campaigns avidly for Huntington’s disease charities.

She has a bronze model from the 2004 Athens Olympics and was twice world champion (2005, 2006). Although she retired in 2009, Sarah continues to contribute to sport – she is a Henley Royal Regatta Steward, was UK Chef de Mission for Team England at the Commonwealth Games and serves on the Board of UKAD (UK Anti Doping).

In 2020, she was the first woman to be appointed as an umpire in the Oxford-Cambridge boat race, which was delayed because of Covid-19 but went ahead in April 2021. She also works with teams and individuals as a leadership and executive coach.

To register via the Huntington’s Disease Association England and Wales website, visit

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