Huntington’s support in Scotland
Discover support, guidance, and up-to-date information tailored for individuals and families affected by Huntington’s disease in Scotland. From healthcare advice to local support groups, this page connects you with the resources you need to navigate life with Huntington’s disease.
Fact Sheets - You, your family and Huntington’s disease
If you or a loved one has, or is at risk of, Huntington’s disease, you will have lots of questions about how it will impact your family and how you live your lives. From driving to life insurance, planning a family to choosing a care home, you can find what you need to know in our downloadable factsheets. Should you need further information please contact our HD Specialist, Youth Service or Financial Wellbeing teams using the links below. You can also email us at sha-admin@hdscotland.org or call 0141 848 0308.
Local service leaflets
Scottish Huntington's Association offers support for individuals and families affected by Huntington’s disease. We provide guidance, practical help, and emotional support to help you manage the challenges.
Aryshire & Arran
DownloadDumfries & Galloway
DownloadFife
DownloadGrampian
DownloadGreater Glasgow & Clyde
DownloadHighland
DownloadLanarkshire
DownloadLothian
DownloadTayside
DownloadFlyers
Access informative flyers on symptoms, support, and research. View online or download to stay informed and connected..
Short Breaks Fund
DownloadImpact and Engagement Funding
DownloadTelling people about Huntington’s disease
DownloadHelping people with Huntington’s disease
DownloadFundraising Guide
DownloadResources for young people
New Things at Max’s House is a story book for ages 0-8. It is a gentle introduction to Huntington’s disease and provides parents with the opportunity to ask questions to their child and add in their family’s Huntington’s disease information.
A great resource to normalise Huntington’s disease conversations in your family.
DownloadLiving with Huntington’s disease: A guide for young people aged 8-12 is an information booklet designed to introduce and educate children aged 8-12 about Huntington’s disease.
This booklet takes a gentle approach to introducing Huntington’s disease symptoms to the child, along with support around feelings and what to expect next.
DownloadLiving with Huntington’s disease: A guide for young people aged 13+ is an information booklet designed to introduce and educate children aged 13+ about Huntington’s disease.
This booklet gives more detailed and age appropriate information about Huntington’s disease symptoms, genetics, risk, relationships, living with Huntington’s disease, genetic testing and emotions.
DownloadTip Jar is a range of resources designed to provide information and advice around key financial topics and challenges young people growing up in Huntington’s disease families may face.
Aimed at ages 16+ these resources were developed in partnership with young people growing up in families impacted by Huntington’s disease.
Visit HereResources for parents
Talking with young people about Huntington’s disease: A toolbox guide for parents is a workbook designed to support you in disclosing your family’s HD to your child. Packed full of information, advice and tips this workbook also allows you a space to note down your own thoughts and ideas.
DownloadHave a look at our current videos for out in the open and Sarah’s advice for parents