Our 2025 Family Gathering: Guest speakers and workshop programme for the day
We are looking forward to the Scottish Huntington’s Association 2025 Family Gathering in Glasgow at the voco Grand Central Hotel in Glasgow on Saturday 8 November.
This year’s event is now fully booked with all 150 places reserved by Huntington’s disease family members and carers. A waiting list for spaces has been opened.
The programme for the day includes local, national and international guest speakers and workshop hosts. Attendees are also invited to attend a World Café-style networking hour immediately following the Family Gathering to meet Scottish Huntington’s Association staff and learn more about the charity’s work and specialist services.
9.30am – 10.00am
Registration and networking
Tea and coffee
10.00am – 10.05am
Opening video
10.05am – 10.15am
Welcome
Chief Executive Alistair Haw
10.15am – 10.30am
Introduction
Sarah Winckless, MBE, Patron, Scottish Huntington’s Association.
Olympic medal winner and double World Champion.
10.30am – 12.00pm
Workshops
Movement and function:
Lorraine Barry, Associate Lecturer in Physiotherapy, Edinburgh Napier University
Speech and Language Therapy – Supporting communication and swallowing:
Abbey Poole, Speech and Language Therapist, Monklands and Coathill Hospitals
Carers Perspective: apathy
Dr Sarah Gunn, School of Psychology and Vision Sciences, University of Leicester
‘Let’s Make Some Noise’
Gregg Muir, Choir Director, Nemo Arts Centre
Past, Present and Future of Genetics in Huntington’s Disease
Dr David Anderson, Greater Glasgow and Clyde Huntington’s Disease Clinical Lead, and Subhashini Crerar, Consultant Genetic Counsellor
12pm – 1.30pm
Lunch and networking
1.30pm – 3pm
Workshops
Movement and function:
Lorraine Barry, Associate Lecturer in Physiotherapy, Edinburgh Napier University
Speech and Language Therapy – Supporting communication and swallowing:
Abbey Poole, Speech and Language Therapist, Monklands and Coathill Hospitals
Carers Perspective: apathy
Dr Sarah Gunn, School of Psychology and Vision Sciences, University of Leicester
‘Let’s Make Some Noise’
Gregg Muir, Choir Director, Nemo Arts Centre
Past, Present and Future of Genetics in Huntington’s Disease
Dr David Anderson, Greater Glasgow and Clyde Huntington’s Disease Clinical Lead, and Subhashini Crerar, Consultant Genetic Counsellor
3pm – 4.30pm
Research update
Professor Asa Peterson
Huntington Research, Translational Neuroendocrine Research Unit, Lund University, Sweden
4.30pm – 4.40pm
Closing reflections
Professor Emerita Lorna Milne, FRSE, Joint Deputy-Chair, Scottish Huntington’s Association Board of Trustees
4.40pm – 4.45pm
2025 – Our Year (video)
4.45pm – 5.45pm
World Café hour
Informal networking to share thoughts, provide feedback, gain further information, ask questions and develop ideas.
Quiet room:
Attendees are welcome to use the quiet room throughout the day. Members of our Scottish Huntington’s Association Huntington’s Disease Specialist team will be there to answer any questions and support.