National Care Framework for Huntington’s Disease goes live!

The National Care Framework for HD has been published and can be viewed and used to improve care and support for HD families at http://care.hdscotland.org/.

An event to formally recognise the launch of the Framework is scheduled to take place in the Scottish Parliament in May.

In the meantime work to develop localised versions of the Framework has now begun. Scottish Huntington’s Association is working on local Frameworks for NHS Ayrshire & Arran, NHS Fife and NHS Grampian in the first instance, and aims to have these available by the autumn 2017.