Supporting families to access benefits and allowances

Our Financial Wellbeing Service was established in direct response to the needs of families to help them access the benefits they are entitled to while supporting with money management, such as household budgeting.

The team works closely with the charity’s HD Specialists and Specialist Youth Advisors to identify clients and ensure families are aware of the benefits and money advice support the team can provide.

This free, confidential, independent advice service operates in line with the Scottish National Standards for advice providers and is authorised and regulated by the Financial Conduct Authority for money and debt advice.

The Financial Wellbeing Service aims to improve the financial wellbeing of families through:

Get in touch at: financialwellbeing@hdscotland.org

*Specialist advice from Scottish Huntington’s Association is completely impartial and never promotes specific products such as bank accounts, mortgages, pensions or insurance products, or providers.*

*During the rollout period of our new Financial Wellbeing Service we are working with families in the south of Scotland only with a view to expanding support nationwide in the near future. In the meantime, your local Citizens Advice Bureau can assist with help on welfare rights, money advice and other matters. You can reach them by calling 0800 028 1456 or visiting their website here.*

A person smiling sat on a sofa

“I had to give up the job that I loved and I was worried about how we’d manage. Our Financial Wellbeing Officer knew what benefits and allowances we were entitled to and helped us to apply. Having that support has made a big difference to how we live as a family.”

Sean

Edinburgh

How we can help

Welfare benefits

Our expert advisors can help you to find out what you can claim.

Our impact

You can view our quarterly reports for up-to-date information about gains secured for families and the number of clients we work with.

Factsheets

Check out our fact sheets, including digital resources for young people.

View Here

Resources

Due to the impact that Huntington’s disease has on the brain and someone’s cognitive ability, most people with the disease find that over time they need increasing support with decision making and money management.

Download

Changes are coming to social security benefits. Changes won’t start until 2026 at the earliest.

  • Universal Credit (UC) payments are rising – Claimants will see a small increase to their standard allowance in 2025/26, with further rises by 2029/30.
  • Health-related UC changes – New claimants who qualify for a health element will get ÂŁ50/week, while existing claims will stay at ÂŁ97/week until 2029.
  • Personal Independence Payment (PIP) assessments tightening – From 2026, it may be harder to qualify for the daily living component. All Scottish claimants should now have been transferred to Adult Disability Payment and should not be impacted by this.
  • Employment and Support Allowance (ESA) and UC Work Capability Assessments (WCA) ending – Expected in 2028, with financial support based on PIP criteria instead.
  • New “Unemployment Insurance” – A proposed benefit replacing new style ESA & new style Jobseeker’s Allowance (JSA), expected in 2028.
  • “Right to Try” Guarantee – Trying out a job won’t trigger a reassessment of your benefits.

Find out more at:

https://www.moneyhelper.org.uk/en/blog/benefits-entitlements/universal-credit-changes

Our Financial Wellbeing Service is here to support Huntington’s families and provide advice.

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