Development Group approves launch version of Framework

The Development Group has signed off a launch version of the National Care Framework for Huntington’s Disease further to changes made following the extensive public consultation.

A summary of feedback from the consultation can be viewed here.

The updated version has also been presented to the Scottish Government, which has warmly welcomed the model suggested.

The Framework is designed to evolve over time as and when evidence and/or health and social care personnel, services and structures change, to prevent it from becoming obsolete. The launch version can be viewed here.

Scottish Huntington’s Association and the National Care Framework Development Group will now work with NHS Boards, HSCPs, local HD families, and health and social care staff to tailor localised versions for each area of the country.