SHAYP is the Scottish Huntington’s Association Youth Project which supports young people aged 8-25 living in families impacted by Huntington’s disease. If a young person is showing symptoms of Huntington’s disease they would be supported by the HD Specialist service. In 2001, SHA realised that young people growing up in HD families needed their own support. Thus, the youth service was born. The timeline below shows how SHAYP has developed over this period:
SHAYP is a world leader in terms of service provision for young people living in families with HD.