Scottish Huntington’s Association has been shortlisted for a prestigious award in recognition of our work with young people growing up in Huntington’s families.

The National Youth Work Awards, hosted by YouthLink Scotland, celebrate the dedication and impact of youth workers and organisations across Scotland, highlighting their invaluable contribution to the lives of young people.

Scottish Huntington’s Association is one of the top three finalists in the Health And Wellbeing Category, sponsored by Children In Need.

Our Youth Service works with 200 young people across Scotland – most are at genetic risk of having inherited the Huntington’s gene and 80% are young carers for a loved one impacted by the disease.

“We’re delighted for our young people and their families that this vital work has been recognised by the National Youth Work Awards committee,” said Grant Walker, Scottish Huntington’s Association Youth Service Lead.

“We see the difference having the right support can make, in fact most recent findings show that 91% of young people cope better with Huntington’s disease because they are involved with our service.

“Together we are creating a generation of young people from Huntington’s families across Scotland who, for the first time, have the knowledge, the language and the confidence to talk about the disease and share their experiences. Today’s young people are more open, empowered and informed than any generation before.

“They are playing a crucial role in reducing stigma that surrounds the disease by building a wider understanding about its symptoms and the impact on families all over the country.

“And they know we will be here to support them over the years as their parent’s health deteriorates and to cope with the impact on their family, their own genetic risk, and bereavement.”

*The winners of all 14 categories will be announced during at the awards ceremony in Glasgow on 12 June*