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Coronavirus crisis appeal:
Stay Home and Step Up

Scottish Huntington’s Association (SHA) is a lifeline for families with Huntington’s disease (HD) – and right now this support is more vital than ever.


As the only charity in Scotland dedicated to serving the HD community, our services are being stretched and our funding streams, including community fundraising and events, have fallen.


SHA is committed to reaching every HD family – but we urgently need your help to make sure no one is left to cope alone.


Join the Stay Home and Step Up campaign and together we’ll reach HD families all over Scotland.


Stay Home and Step Up...


For school pupils caring for family members.


For households facing additional financial hardship.


For families who fear having no one to turn to.


For young people unable to visit parents in care homes.

We miss our Mum, we’ve never had to go this long without being together. For Mum, not knowing when or if she’ll see her kids again is her worst nightmare come true. She keeps asking to see us and we have to say ‘no’ because we want to keep her safe. On top of that, I’ve lost shifts at the bar where I work and our dad isn’t sure what’s happening with his job.”


Student and SHA Youth Ambassador, Cameron Newport (19), son of Wendy (46)  



Stay Home and Step Up to support HD families:

Or take part in one of our Stay Home and Step Up events:

Step Up Challenge

Step Up Challenge

Step up to take on the West Highland Way or any famous Scottish trail during your 1 hour of exercise a day or from the comfort of your own home. 

Host a virtual party

Host a virtual party through an app like Zoom or House Party. Show off your musical skills, organise a fun quiz or even a SHAre Tea for HD party to raise money for Scottish Huntington's Association.

Create a Facebook fundraiser

Create a fundraiser at any time or step up your birthday celebrations via Facebook.

What our families are telling us


  • 60% of people with HD, and their carers, are worried about becoming even more isolated during the pandemic


  • A common concern among people with HD, living alone, is they are scared about falling and no one being there to help


  • One in three people with HD are worried about having enough money to pay for essential bills like food and fuel because of the current crisis


  • 48% of family members said the person with HD in their household didn't understand the social distancing rules and were worried about the Police taking action


  • 40% of families report they are having to take on additional caring responsibilities because there is less support available from care agencies right now

  • Over 150 families are now unable to visit loved ones living in long-term care


  • 31% of people with HD said they were worried about being unable to get help with their mental health


Where your money goes


Our low cost approach means every donation makes a huge difference. For every £1 you give to SHA, 87p reaches families living with Huntington’s disease through the delivery of  SHA's lifeline services. The remaining 13p is spent on support costs, including investing in fundraising so we can support even more of Scotland’s HD families.