Scottish Huntington's Association Youth Service (SHAYP) provides support to young people aged 8-25 living in a family impacted by Huntington's disease (HD). If you are worried about Juvenile Huntington's disease (JHD) please contact your local HD Specialist.
There are lots of different ways you can be involved with SHAYP.
Click the services below to find out more about them.
1 To 1 Sessions
What you chat about in these visits is private and confidential between you and your SHAYP advisor. SHAYP staff will not tell anyone else what is discussed (even your parents) unless you give permission, or you are at risk.
SHAYP groups are for ages 8-12 and 13-17 and are held in February, April and October.
The groups are a great way to meet other people who understand what living in a HD family is like, as well as teaching you more about HD in a fun and relaxed way.
Don’t be nervous about joining us for the first time- the groups are really friendly.
These are a fabulous way to come along to a group, meet other young people growing up a HD family and have fun trying different activities.
Over the years we’ve tried lots of activities- ice skating, trampolining, white water rafting, go-karting, chocolate workshops, science centre, mini golf, climbing, cinema…..we’re willing to give most things a try.
These days out are great and allow you to have a break from home and try something new
SHAYP offers a two night residential break to each age group, throughout the year:-
8-12 group in April 13-17 group in October 18-25 group in November
During the residential, there's a great mix of fun activities as well as some focussed HD work.
These breaks are free of charge and a great way to learn about HD and have some YOU time.
50 young people join SHAYP for 5 days of fun, festivities and take part in activities such as gorge walking, archery, abseiling, biking, climbing, kayaking…..to name but a few of the day activities. We then do even more activities at night, such as swimming, games night and party night.
Those age 1st year and older also take part in our HD Festival, which looks at a particular HD topic.
This a brilliant week away and the according to SHAYP young people “the best thing ever!”
Camp is also free of charge.