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What Services & Support does SHAYP offer?

SHAYP offers lots of different opportunities for young people to become involved in the HD Community.

 

Information and Advice
SHAYP offers young people the opportunity to access age appropriate and reliable information relating to HD.
SHAYP can also answer any questions you may have about Huntington's disease.

121 Support
SHAYP can offer one to one support to help you manage living in a family with HD/ being at risk of carrying the gene. This support can be offered face to face or via text/email/Facebook.

Group Sessions
SHAYP offers structured group sessions for those aged 8-12, 13-17 and 18+. During these groups young people are given the opportunity to look at HD in an informative and safe manner, whilst making new friends.

Fun Activities
SHAYP offers regular fun activities throughout the year. Examples of activities have included: - white water rafting, chocolate making, cinema, bowling, laser quest, paint-balling and photography workshops.

Summer Camp
For 5 days during the summer holidays, SHAYP offers young people the opportunity to attend a residential break. During this trip, the young people have the opportunity to have a break from any caring responsibilities they may have at home, have fun with friends and try new & exciting activities. Those aged 13+ can attend a Festival designed to improve their knowledge around HD.

Facebook
SHAYP offers a Facebook page which allows Young people to keep up to date with SHAYP. Details of all forthcoming events are posted on this page along with pictures after the event. If you wish to contact your specialist youth advisor via Facebook you can do so.

Information/ Advice/ Support to parents
SHAYP also offers information/advice/support to parents and professionals who have children growing up in families impacted by HD. This support may include:

  • Providing parents with accurate, age appropriate information
  • Supporting parents in telling children about H.D.
  • Supporting parents and families as HD progresses
  • Encouraging open, accurate communication in families

Information/ Advice/ Support to professionals
SHAYP also offers information/advice/support to professionals working with children growing up in families impacted by HD. This support may include:

  • Providing professionals with accurate, age appropriate information and resources
  • Raising awareness with professionals
  • Training for professionals e.g. school, social work, youth workers
  • Support and advocacy

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