Despite torrential conditions 14 determined walkers from the Renfrewshire Huntington’s disease support group put their best foot forward to raise £1,800 to help support people living with the degenerative brain condition.
The funds will go to help the work of the Scottish Huntington’s Association (SHA) the only charity in the country supporting families living with the disease.
The group braved the elements to complete the walk around Erskine last month.
The Renfrewshire Support Group was set up by Margaret Moncrieff from Houston who organised the walk.
“My sister was diagnosed with Huntington’s disease (HD) ten years ago. HD is a genetic condition and I was told that I had a 50% risk of inheriting the faulty gene. As it happens I have been fortunate enough to learn that I do not have the condition but I am conscious that other members of HD families are not so lucky. So, I try and do all I can do help the SHA who do such brilliant work to support those of us affected by HD,” said Margaret.
“Big thanks are due to all who supported us, including the members of Houston and Killellan Kirk, the ladies of the Erskine Keep-fit class, the staff of Walker Laird, Solicitors in Paisley, and Morrisons at Erskine. The funds will help the SHA to continue to provide a comprehensive support and advisory service to HD families.”
SHA provides support and advice for families affected by Huntington’s disease (HD), through a team of specialist nurses, financial advisers and wellbeing volunteers along with a dedicated youth support service.
HD is a hereditary progressive condition that causes changes to muscle control, thinking processes and can cause long-term mental health issues. The average age of onset is between 33 and 45 and those living with the condition will require 24 hour care as it progresses into its later stages. Each child of someone diagnosed with HD is at 50% risk of developing the condition themselves. There is, as yet, no cure.
The Renfrewshire group meets once a month at Accord Hospice in Paisley and is always looking for new members. Anyone interested in joining the group should contact the SHA on 0141 848 0308.