The work of SHA is to be recognised at a special 30th Anniversary celebration hosted by Provost of Renfrewshire, Lorraine Cameron.
The charity was set up in 1989 by families looking for information, support and better care for those living with HD. Since then, SHA has driven forward the development and co-ordination of world-leading specialist services across Scotland for people living with HD.
It also supports young people growing up in an HD-impacted family; provides financial and wellbeing advice; enables a network of family branches all over the country; and raises awareness about the disease.
Provost Cameron said:
“Scottish Huntington’s Association supports many families within the Renfrewshire area and it is important that we recognise their important contribution. I am looking forward to joining them in celebration of their 30th anniversary.”
Huntington’s disease is a complex genetic condition causes changes to the thinking processes (an early onset dementia), loss of muscle control, involuntary movements, and mental illness. People with HD may lose the ability to walk, talk, eat, drink or make decisions and go on to need 24-hour care.
Each child of an HD parent has a 50% likelihood of inheriting the gene which leads to the disease, for which there is currently no cure. In Scotland today there are 1100 people with HD and a further 6000 are believed to be at risk.
John Eden, Chief Executive of SHA, said:
“We’re delighted that Renfrewshire Council has chosen to highlight the work that we do to help people and families living with this terrible disease.
“It is a wonderful opportunity to thank the families and supporters who continue to be at the very heart of SHA, while also reaching out to combat the widespread lack of understanding that still surrounds HD.”
The Civic Reception will be held at the Glynhill Hotel, Renfrew, on Friday, 10 May, 2019 from 7pm (drinks reception) followed by dinner and entertainment. To reserve places, please email firstname.lastname@example.org or call 0141 848 0308 and ask for Susanne or Kim.