A desire to help people living with the the degenerative neurological condition Huntington’s disease (HD), led 13 year Maedòc Ferguson to saddle up for a cycle round Cumbrae.
For his effort Maedòc, who attends Garnock Community Campus in Largs, raised more than £100 for Scottish Huntington’s Association (SHA), the only charity in the country supporting families impacted by HD.
‘Huntington disease is, in my opinion, an under-looked disease that affects lots of families all over Scotland and with its life changing symptoms a cure would be amazing. Personally, I have never directly been effected by it and I hope this money will help families who have,’ said Maedòc.
SHA supports HD families through a national network of specialists, a world leading youth support team and its financial wellbeing service.
HD is a complex condition with symptoms that typically begin to develop between the ages of 30 and 50. It causes three main groups of symptoms: changes to thinking processes – a type of early onset dementia, loss of muscle control and involuntary movements which lead to loss of speech and swallow along with mental illness. Those impacted by HD may eventually lose the ability to walk, talk, eat, drink or make decisions and will eventually need 24 hour care. It is also hereditary with each child of those diagnosed at 50% risk developing the disease. There is currently no cure.
It is estimated there are around 1100 people living with HD in Scotland and up to 6000 potentially at risk.
‘We are extremely grateful to Maedòc for his efforts. We would totally agree with his view that this is a much misunderstood and underreported condition that affects not just the person diagnosed but whole families. It’s great that young people like Maedòc are helping us to lift HD out of the shadow and increase understanding about the condition,’ said SHA fundraising manager, Dougie Peddie.
Find our more about SHA at hdscotland.org Picture shows: Maedòc at the end of his successful round Cumbrae cycle.