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Good luck to full-time carer Taylor Graham who is returning to the Edinburgh Fringe with his new charity stand-up show in support of people with Huntington’s disease and their loved ones. This year the 25-year-old from Edinburgh will be at the Counting House (Fringe venue 170) where he will joined…
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Beinn Burroughs, from Banff, who tested positive for the gene that causes Huntington’s disease when he was 18 and studying at university, is set to take on a unique and gruelling challenge in support of other families impacted by the devastating condition. Having graduated earlier this year, Beinn (21) is…
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Sarah Mitchell, from Perthshire, has joined our team of Youth Ambassadors to help other young people and raise awareness about how Huntington’s disease impacts families. The 18-year-old is taking on the volunteer role after losing her much-loved mum Natalie to the disease 18 months ago. Coming to terms with her…
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Young people growing up in families impacted by Huntington’s disease need age-appropriate tools and information to help them cope – while parents are unsure about what to say and when, a recent study has found. University of Aberdeen researchers have been gathering evidence over two decades to help inform the…
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Today we meet Logan Straub who has inspired his employers and colleagues to help families living with Huntington’s disease. The 20-year-old apprentice from Falkirk spoke to the workforce at John Jenkins and Son Steel Fabricators about having Huntington’s disease in his family. They were so moved by Logan’s experiences that…
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Now in its third year, families are again taking to lead in our Cup O’ Kindness appeal by sharing their stories to raise awareness and funds for families, like their own, who are impacted by Huntington’s disease. Inspired by Rabbie Burns’ Auld Lang Syne and building on our strong Scottish…
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Funding is now in place for the Scottish Huntington’s Association Summer Camp 2022 thanks to a grant of £19,603 from the Short Breaks Fund, which is operated by Shared Care Scotland on behalf of the Scottish Government. This is combined with additional funding, including a £5,000 donation received in October…
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Scottish Huntington’s Association has launched a suite of digital financial wellbeing and information resources, developed by the charity’s Youth Service in collaboration with our young people. The animations and downloadable factsheets are designed to help young people growing up in HD families to manage their money and take the…
