Scottish Huntington’s Association’s mission is carried out in line with our founding values and principles, which guide our work with families to transform the lives of everyone impacted by Huntington’s disease.


To transform the landscape of care for people living with Huntington’s disease so that everyone gets the right support at the right time and in the right way.


To empower families living with Huntington’s disease, ensure they are better connected to support and services, enhance quality of life and raise awareness about the impact Huntington’s disease has on the people who live with the condition.

Our values and principles

  • We believe in empowering individuals, families and groups to meet the challenges of Huntington’s disease.

  • We are committed to supporting people living with Huntington’s disease in a way that promotes respect, dignity and self-worth and recognises that they have an important role to play in their community.

  • We are passionate about the right of individuals to make choices about matters that affect their lives and to plan ahead for those matters that may affect them in the future.

  • SHA cannot function without the passion, dedication and commitment of families and we strive to work in partnership with them, in the running of the charity, at every level.

  • We believe that every individual, whether living with Huntington’s disease, a staff member, director or other stakeholder, should expect to be treated fairly and experience a culture that values individuality, embraces diversity and refuses to tolerate discrimination of any kind.

  • We believe our services must be flexible and designed around the individual needs of people living with Huntington’s disease.

  • As a group, people living with Huntington’s disease are often under-represented and their needs often under recognised. SHA is passionate about redressing the balance by advocating locally and nationally.