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Scottish Huntington’s Association’s mission is carried out in line with our founding values and principles, which guide our work with families to transform the lives of everyone impacted by Huntington’s disease.

Our mission

  • To improve significantly the quality of life for children and adults living with Huntington’s disease.

  • To maintain, develop and support specialist services for children, adults and their families living throughout Scotland.

  • To promote, through information and education, greater public and professional understanding about the complex issues associated with Huntington’s disease.

  • To provide specialist assessment and information relevant to the management of Huntington’s disease.

  • To develop effective links with health, social and other statutory and voluntary agencies involved in the care of people impacted by Huntington’s disease, and provide advice, information and advocacy to improve standard of care.

Our values and principles

  • We believe in empowering individuals, families and groups to meet the challenges of Huntington’s disease.

  • We are committed to supporting people living with Huntington’s disease in a way that promotes respect, dignity and self-worth, and recognises that they have an important role to play in their community.

  • We are passionate about the right of individuals to make choices about matters that affect their lives and to plan ahead for those matters that may affect them in the future.

  • SHA cannot function without the passion, dedication and commitment of families and we strive to work in partnership with them, in the running of the charity, at every level.

  • We believe that every individual, whether living with Huntington’s disease, a staff member, director or other stakeholder, should expect to be treated fairly and experience a culture that values individuality, embraces diversity and refuses to tolerate discrimination of any kind.

  • We believe our services must be flexible and designed around the individual needs of people living with Huntington’s disease.

  • As a group, people living with Huntington’s disease are often under-represented and their needs often under recognised. SHA is passionate about redressing the balance by advocating locally and nationally.