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News 2018


#youandmeagainstHD is our new campaign to raise our supporter base by three by 2020. Watch Staccy and Lisa’s stories below about why we need more supporters and join our family to fight HD.

View news from previous years:
2017  –  2016  –  2015

Help row the Clyde for Huntington’s disease

Volunteers are being invited to join Olympic medallist and World Champion rower, Sarah Winckless, to help her row the length of the River Clyde for charity. As Patron of the Scottish Huntington’s Association (SHA), she has has teamed up with Clydesdale Amateur Rowing Club to organise the 176 km challenge.

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Managing expectations about HD breakthrough

The historic news of a breakthrough in the treatment of Huntington’s disease (HD) has caused excitement worldwide, and for good reason. It is the first time any drug has lowered the levels of the faulty protein known to cause the disease and consequently, it is hoped, will improve the devastating

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Until the penny drops

Colleagues from the Huntington’s Disease Association of England and Wales and I attended Parliament on 21st February, to meet Treasury Minister John Glen to discuss the difficult issues around access to insurance for people with a genetic risk for HD. I know it’s an issue which provokes strong feelings in

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New drive launched to fight Huntington’s disease

A charity is appealing for more friends to help fight a devastating neurological condition. The Scottish Huntington’s Association (SHA), the only charity in the country supporting families living with the dehabilitating degenerative neurological condition, Huntington’s disease (HD), has launched a new recruitment drive to boost support. #youandmeagainstHD: find a friend

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Calling all cyclists to Ride the Clyde

Cyclists looking for a New Year charity challenge are being urged to cross all 17 bridges over the River Clyde from Dalmarnock to Bowling. The ‘Ride the Clyde’ 30-mile challenge has been organised by Scottish Huntington’s Association (SHA), the only charity in the country supporting families with the degenerative neurological

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Lisa’s Story

Lisa was diagnosed with Huntington’s disease when she was 30. I only found out I had HD five years ago. It runs in my dad’s family, but he was adopted, so there are no other cases of it in the wider family, so it came as a real shock. I

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Staccy’s Story

Twenty nine year old Staccy was diagnosed with Huntington’s disease in 2011. My Huntington’s disease comes from my grandfather’s side of the family, who passed it on to my mum and then on to me. I was 19, I was rushed into hospital for a gene test when I was

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