The 2019 Family Conference promises to be an extra special gathering as families come together in our 30th Anniversary year to celebrate the accomplishments of people living with HD towards our shared goals of improved care and better treatment. Held over two days at the MacDonald Aviemore Resort, a packed
An Edinburgh woman has been praised by a Scottish author and judge of SHA’s Writing Out Of The HD Shadow competition for shining a light on Huntington’s disease and the challenges faced by families. Sheila Scougall, 72, penned a powerful 150-word prose, simply entitled Dad after being inspired by the
The winners of the 2019 Writing Out Of The HD Shadow competition have been presented with their awards at a special ceremony in Edinburgh. This year’s competition invited young people to submit an original poem in the U-16 category, while over-16s were asked to pen 150 words of ‘flash fiction’.
Thank you to everyone who entered this year’s Writing Out Of The HD Shadow competition. Here are this year’s winning entries. Under 16’s: Writing About HD: The Light Beyond The Shadow No Mercy by Georgie Garrett I have no mercy. I am the fire that burns you from the inside. I am
Lanarkshire mum Gillian McNab is raising awareness about Huntington’s disease (HD) by sharing her story with people living in her community. The 49-year-old, who discovered eight years ago that she had inherited the faulty gene that leads to the disease, has volunteered as a You, Me and HD speaker to
Scottish Huntington’s Association (SHA) trustee Marie Short has been made an MBE in the Queen’s Birthday Honours List in recognition of her services to supporting people affected by Huntington’s disease (HD). Marie (48), from Falkirk, has been on the board of SHA for five years, sharing both her professional expertise
It’s not every day you have your name put on a nine-tonne truck but for Business Support Assistant Louise McMinn it was a very pleasant surprise! This was just one of the ways that the family-run haulage company A & D Logistics in Linwood decided to welcome her as a
Families from across Scotland came together at the annual Scottish Huntington’s Association Carers’ Conference to explore ways to build the resilience and skills needed to provide the best support for loved ones with Huntington’s disease The focus of this year’s event was to provide a ‘tookit’ of resources and information,
The third Scottish Huntington’s Association 30th Anniversary bench has been installed – gifted by families across Tayside who are impacted by Huntington’s disease. The unveiling at Balhousie Rumbling Bridge Care Home, near Kinross, follows earlier events led by families in Edinburgh, Lothian and Fife as part of the celebrations to
The second bench to mark the 30th Anniversary of Scottish Huntington’s Association (SHA) has been installed by families in Fife. They gathered at Bandrum Nursing Home in Saline, near Dunfermline, where they were joined by SHA HD specialists, staff from the nursing home, and local MP Douglas Chapman. Mr Chapman said “It was
