Applications invited for award-winning CPD course

Applications are now open for Scottish Huntington’s Association’s award-winning CPD course, Huntington’s disease – an enabling approach to supporting families, designed and delivered in partnership with the University of Stirling.  The 14-week module is of benefit to all practitioners working in health, social care, advocacy and community organisations who currently, or may potentially, work with people with Huntington’s disease (HD).  The flexible blended-learning module will commence with two study

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Families unveil bench to mark 30th anniversary

Families from across Edinburgh and Lothian who are impacted by Huntington’s disease (HD) will gather at a special event at Drummond Grange Nursing Home in Lasswade, Lothian, on Thursday, 9 May 2019. They will be joined by Colin Beattie MSP, HD specialists and guests for the unveiling of a bench

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Provost celebrates work of SHA

The work of SHA is to be recognised at a special 30th Anniversary celebration hosted by Provost of Renfrewshire, Lorraine Cameron. The charity was set up in 1989 by families looking for information, support and better care for those living with HD. Since then, SHA has driven forward the development

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Let’s talk about Huntington’s disease

As part of our 30th anniversary celebrations, we are recruiting 30 volunteers to take the You, Me and HD campaign into villages and towns across Scotland. You, Me and HD ambassadors will give talks to community groups and promote their efforts on social media. Presentation training and publicity materials will

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SHAYP awarded additional funding

Scottish Huntington’s Association Youth Project (SHAYP) has been awarded £249,708 from The National Lottery Community Fund. The funding means SHAYP can continue to provide practical and emotional support for young people in HD families, aged from eight to 25, for a further two years. There are around 1100 people with

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HeaDline Service Now LIVE

Yesterday, we launched our new HeaDline service. HeaDline offers a new space to for you to have your say on recent health developments. The latest Huntington’s Disease health-related news, such as clinical trial developments and Q&As, will be posted on to the site and can be sent directly to your

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