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Genetic discrimination a barrier to equality says charity chief

One of the country’s leading neurological support charities claims that genetic discrimination is one of the the last barriers to equality. John Eden, chief executive of the Scottish Huntington’s Association (SHA), who along with the Huntington’s Disease Association and the Huntington’s Disease Association Northern Ireland, support UK families living with

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Research breakthrough welcomed

The Scottish Huntington’s Association has welcomed the breakthrough in Huntington’s disease research that could see treatment for the condition to stop, and even reverse its progression. For the first time a drug has lowered the amount of faulty protein that is known to cause Huntington’s Disease. An experimental drug, injected

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Charity launches new young person’s guide to Huntington’s disease

The Scottish Huntington’s Association Youth Project (SHAYP) has launched a new range of literature designed to support children and young people living in families impacted by the degenerative neurological condition, Huntington’s disease (HD). ‘Living with Huntington’s disease; A guide for Young People Aged 8-12 and 13+’ have been specially created

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