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News 2018


#youandmeagainstHD is our new campaign to raise our supporter base by three by 2020. Watch Staccy and Lisa’s stories below about why we need more supporters and join our family to fight HD.

View news from previous years:
2017  –  2016  –  2015

£340k boost for Financial Wellbeing Service

A service designed to ease financial stress for people living with the degenerative neurological condition, Huntington’s disease (HD), has been given a £340k boost. Scottish Huntington’s Association (SHA) has secured the cash from a variety of sources to run its Financial Wellbeing Service for another three years. The financial team

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Pedal power helps Garnock pupil raise charity cash

A desire to help people living with the the degenerative neurological condition Huntington’s disease (HD), led 13 year Maedòc Ferguson to saddle up for a cycle round Cumbrae. For his effort Maedòc, who attends Garnock Community Campus in Largs, raised more than £100 for Scottish Huntington’s Association (SHA), the only

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Saddle up for Bike Aboot Bute

Cyclists are being urged to saddle up for a trip ‘Doon the Water’ to join a Bike Aboot Bute tour in aid of the Scottish Huntington’s Association (SHA). The charity, the only one in the country supporting families living with the degenerative neurological condition Huntington’s disease (HD), is organising a

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Association welcomes Frank’s Law

Scottish Huntington’s Association (SHA) welcomes the recent change in the law concerning charges for personal care services. From April 2019, Frank’s law (named after former Dundee United footballer, Frank Kopel) will mean, people under 65, receiving social care will get the same existing free care arrangements for those over 65.

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Paisley poet takes top spot in competition

A Paisley poet picked up a top prize in a competition to highlight the impact of a devastating neurological condition. Basia Palka was a winner in the ‘The light beyond the shadow’ competition organised by the Scottish Huntington’s Association to highlight the impact the degenerative condition, Huntington’s disease, (HD) has

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Drongan girl breaks £6K barrier for charity

Former Kyle Academy pupil Deborah Beaton has smashed the £6K fundraising barrier to help families living with a devastating neurological condition. Deborah completed this year’s Virgin London Marathon in 4 hours 38 minutes in aid of Scottish Huntington’s Association, the only charity in the country supporting families impacted by the

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