Residents of Morayshire living with the degenerative neurological condition Huntington’s disease (HD) can now call on a new support group to help them cope.
Set up by the Scottish Huntington’s Association (SHA), the only charity in the country supporting HD families, the first meeting will take place on March 16 at 2pm in The Inkwell, Elgin.
‘There has been a steady increase in the number of approaches we have had from HD families in the Morayshire area, so setting up a new support group here seemed like an obvious way of reaching out,’ said SHA family group coordinator, Isobel Darroch.
‘HD can be a very isolating disease and getting involved in a support group is a way of learning from others going through similar experiences. Sharing knowledge with other people can often make a huge difference to the way they cope with the condition and can help improve the quality of life of everyone impacted by HD.’
The SHA supports families through a national network of HD specialists; a world leading youth support team and its financial wellbeing service. HD is a complex neurological condition with symptoms that typically begin to develop between the ages of 30 and 50. It causes three main groups of symptoms: changes to thinking processes – a type of early onset dementia, loss of muscle control and involuntary movements which lead to loss of speech and swallow along with mental illness. Those impacted by HD may eventually lose the ability to walk, talk, eat, drink or make decisions and will eventually need 24 hour care. It is also hereditary with each child of those diagnosed at 50% risk developing the disease. There is no cure.
It is estimated there are around 1100 people living with HD in Scotland and up to 6000 potentially at risk.
If anyone would like to find out more about the group and how to get involved please contact Isobel on 0141 848 0308. ends