By leaving a Gift in your Will, you will help Scottish Huntington’s Association (SHA) reach families across Scotland with a wide range of support to ensure they can have a better quality of life and manage the impact of living with Huntington’s disease (HD). 


In 1989 SHA was founded by families living with Huntington’s disease to support other families with the condition. They recognised the overwhelming struggle that HD introduces to family life, and founded the charity to help any family impacted by HD who needed help. Their legacy is a world-leading extensive network of specialist clinical services, financial wellbeing support and youth services reaching 97% of the HD population in Scotland. 


Families are still at the heart of everything SHA does and inform every decision we make as a charity. It is our mission to reach families with the right support, at the right time, in the way that’s right for them. We’re helping families cope with difficult diagnoses, learn to manage symptoms, access other support, stay out of poverty and cope with the impact on their mental health.  


By leaving a Gift in your Will to Scottish Huntington’s Association, all of this becomes a part of your legacy which will provide for families for years to come. 

I watched as Huntington's disease changed my outgoing, fashion loving best friend into someone that could turn on you at any moment. Mary had witnessed the decline and passing away of both her dad and her sister, so she knew what her future looked like when she received a positive test result at 18. 


I am the person I am today because of Mary. I've learned not to judge because you never know what someone is going through. Supporting Scottish Huntington’s Association and leaving a Gift in my Will is my way knowing that Mary will always be with me - and to say thanks for the difference the association made in our lives.


Why should I make a will? 

Making a will ensure your wishes are carried out. This is your way of making sure your family, friends and the causes you care about are looked after when you’re gone.  

How do I make a will? 

We recommend you make a will with the assistance of your solicitor who will be able to keep you right and make sure it’s accurate, legally binding and the best representation of your wishes. 

If you don’t have a solicitor The Law Society of Scotland can help you find one. (

Does it cost to make a will? 

The short answer to this question is yes. You will need to pay your solicitor for their will writing service and the amount they charge can vary hugely depending on your needs. 

Can I update my current will to include Scottish Huntington’s Association? 

Yes. You can add a codicil for any minor changes to your Will, including adding a charity. However if you need to make several changes it may be better to rewrite you will. Your solicitor will be able to advise you on this. 


Can I specify how I would like my gift to be used? 

Yes. Please contact our Legacy Officer for more information on or phone 0141 848 0308. 


Will my gift be taxed? 

No. Gifts to charities are exempt from Inheritance Tax and this can be a way of reducing exposure of your estate to tax. For more information, visit the HM Revenue & Customs website 


I’m an Executor of an estate and there’s a gift to Scottish Huntington’s Association in the Will. Who should I contact? 

Please write to our Legacy Officer at: 


Scottish Huntington’s Association 

Business First 

Burnbrae Road 


PA1 2FB 


Alternatively please email Legacy Officer at or phone 0141 848 0308