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Advice about HD and Someone to Advocate for You

It is important the information you obtain about HD is correct therefore we would recommend you refer to the information sections on the website or you may wish to get further specialist advice about HD from an HD Specialist in your area.


A process of supporting and enabling people to

  • Express their views and concerns
  • Access information and services
  • Defend and safe guard their rights
  • Have their wishes genuinely considered when decisions are being made about their lives
  • Explore choices and options

People with Huntington’s disease often have cognitive (thinking processes) changes or experience mental health problems.

An independent advocate will represent only your wishes without judging you or giving their personal opinion. The belief is that you are the expert on your life and it is your view of what you wish to happen that advocates will act upon.

To find an independent advocacy service in your area, click HERE.

Other useful contacts

Scottish Independent Advocacy Alliance
Click here for the website
or call 0131 556 6443

NHS Inform
Click here for the website
or call 0800224488

Mental Welfare Commission
Click here for the website
or call 0131 313 8777 or 0800 389 6809

Many Local Authorities also support their own Advocacy Services so it will be worthwhile looking at their own website as well.

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