A Coop store in Leith has raised more than £2000 to help support a former employee living with an incurable degenerative neurological condition.
Customers in the store chose the Scottish Huntington’s Association (SHA) to benefit from their community fund after discovering former employee Donna Irving had been diagnosed with the Huntington’s disease (HD).
Donna met her partner Roan, who is now the manager of the store on
McDonald Road, when they were both trainees.
SHA is the only charity in the country supporting people living with HD and was one of 1000s of charities celebrating the final totals raised across the UK where Coop membership raised £19 million for our Local Causes.
‘The SHA offers tremendous support to both Donna and myself so we are both grateful for all the customers who have nominated them as one of the store’s chosen charities,’ said Rohan.
‘Dealing with HD can be extremely stressful and knowing you can call on their support and expertise at any time is a great help.’
The SHA supports HD families through a national network of specialists, a world leading youth support team and its financial wellbeing service.
HD is a complex condition with symptoms that typically begin to develop between the ages of 30 and 50. It causes three main groups of symptoms: changes to thinking processes – a type of early onset dementia, loss of muscle control and involuntary movements which lead to loss of speech and swallow along with mental illness. Those impacted by HD may eventually lose the ability to walk, talk, eat, drink or make decisions and will eventually need 24 hour care. It is also hereditary with each child of those diagnosed at 50% risk developing the disease. There is no cure.
It is estimated there are around 1100 people living with HD in Scotland and up to 6000 potentially at risk.
Anyone interested in getting involved in an SHA fundraising event can contact Linda Winters on 0141 848 0208.
Picture shows: Coop assistant Martha Pearson (left) hands over their donation to SHA trustee Dina D’Souza