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Charity calls for volunteers to ride the rapids for Huntington’s disease

Scotland’s leading neurological charity is on the lookout for volunteers who aren’t afraid of getting their feet wet.

The Scottish Huntington’s Association is looking to fill a raft to take on the white water rapids of the River Tay.

‘This would be a great team building exercise for any businesses looking for something different to do out of the office, or just a fun day out for a group of friends,’ said SHA community fundraiser, Gemma Powell.

The course covers a six-mile stretch of the Tay from Aberfeldy to Grandtully. Volunteers will get fully trained on the fundamentals of river rafting before taking on the challenge of the white water course. Rafting trip includes full safety equipment, qualified and experienced river guides.

SHA supports HD families through a national network of specialists, a world leading youth support team and its financial wellbeing service.

HD is a complex condition with symptoms that typically begin to develop between the ages of 30 and 50. It causes three main groups of symptoms: changes to thinking processes – a type of early onset dementia, loss of muscle control and involuntary movements which lead to loss of speech and swallow along with mental illness. Those impacted by HD may eventually lose the ability to walk, talk, eat, drink or make decisions and will eventually need 24 hour care. It is also hereditary with each child of those diagnosed at 50% risk developing the disease. There is no cure.

It is estimated there are around 1100 people living with HD in Scotland and up to 6000 potentially at risk.

‘This promises to a great day out and in to the bargain volunteers will be raising some much needed funds for our work in support of HD families,’ said Gemma.

Rafters are being asked to raise just a minimum of £99 to take part in the event which is takes place on July 14. Contact Gemma on 0141 848 0308 gemma.powell@hdscotland.org to sign up.

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