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Italian gospel choir flies in for fundraiser

An award winning gospel choir from Italy is appearing at Glasgow’s Pollokshaws Town Hall this month to raise funds for the Scottish Huntington’s Association. The Harmony Gospel Singers are renowned group of singers and musicians directed by Stefania Mauro who have entertained audiences around the world Stefania is graduate of

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Actor wanted for HD film

The Royal Conservatoire of Scotland are currently casting for a paid role in an upcoming short film, ‘Incoming Tide’, which centres around a pair of sisters living with a Huntington’s diagnosis in the family. As an institution committed to showing authentic diversity on screen, RCS would like to hear from anyone

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Incoming Tide

Hi there, My name’s Joanna and I am producing a Royal Conservatoire of Scotland film called Incoming Tide which tells the story of Flick (Felicity) Cooper and her sister Erin who live on a small, picturesque Scottish Island. Their parent has Huntington’s Disease, and while Erin has taken her test

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HeaDline Service Now LIVE

Yesterday, we launched our new HeaDline service. HeaDline offers a new space to for you to have your say on recent health developments. The latest Huntington’s Disease health-related news, such as clinical trial developments and Q&As, will be posted on to the site and can be sent directly to your

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New Moray support group for HD

Residents of Morayshire living with the degenerative neurological condition Huntington’s disease (HD) can now call on a new support group to help them cope. Set up by the Scottish Huntington’s Association (SHA), the only charity in the country supporting HD families, the first meeting will take place on March 16

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Help row the Clyde for Huntington’s disease

Volunteers are being invited to join Olympic medallist and World Champion rower, Sarah Winckless, to help her row the length of the River Clyde for charity. As Patron of the Scottish Huntington’s Association (SHA), she has has teamed up with Clydesdale Amateur Rowing Club to organise the 176 km challenge.

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Managing expectations about HD breakthrough

The historic news of a breakthrough in the treatment of Huntington’s disease (HD) has caused excitement worldwide, and for good reason. It is the first time any drug has lowered the levels of the faulty protein known to cause the disease and consequently, it is hoped, will improve the devastating

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Until the penny drops

Colleagues from the Huntington’s Disease Association of England and Wales and I attended Parliament on 21st February, to meet Treasury Minister John Glen to discuss the difficult issues around access to insurance for people with a genetic risk for HD. I know it’s an issue which provokes strong feelings in

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New drive launched to fight Huntington’s disease

A charity is appealing for more friends to help fight a devastating neurological condition. The Scottish Huntington’s Association (SHA), the only charity in the country supporting families living with the dehabilitating degenerative neurological condition, Huntington’s disease (HD), has launched a new recruitment drive to boost support. #youandmeagainstHD: find a friend

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