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Association welcomes Frank’s Law

Scottish Huntington’s Association (SHA) welcomes the recent change in the law concerning charges for personal care services. From April 2019, Frank’s law (named after former Dundee United footballer, Frank Kopel) will mean, people under 65, receiving social care will get the same existing free care arrangements for those over 65.

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Paisley poet takes top spot in competition

A Paisley poet picked up a top prize in a competition to highlight the impact of a devastating neurological condition. Basia Palka was a winner in the ‘The light beyond the shadow’ competition organised by the Scottish Huntington’s Association to highlight the impact the degenerative condition, Huntington’s disease, (HD) has

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Drongan girl breaks £6K barrier for charity

Former Kyle Academy pupil Deborah Beaton has smashed the £6K fundraising barrier to help families living with a devastating neurological condition. Deborah completed this year’s Virgin London Marathon in 4 hours 38 minutes in aid of Scottish Huntington’s Association, the only charity in the country supporting families impacted by the

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Aberdeen runner breaks £4000 barrier for charity

Aberdeen runner Steven Henderson has smashed the £4000 fundraising barrier to help families impacted by the degenerative neurological condition Huntington’s disease (HD).   Steven raised the sum on his second London Marathon in aid of the Scottish Huntington’s Association, the only charity in the country supporting families living with the

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Carers’ conference comes to Stirling

Families impacted by the degenerative neurological condition Huntington’s disease (HD) gathered at the Golden Lion in Stirling recently. Organised by the Scottish Huntington’s Association (SHA), their Carers Conference focused on sharing experiences and looking at new ways of helping families cope with living with HD. HD is a complex condition

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Skydivers wanted for charity jump 

Anyone who has ever fancied free falling from 10,000 feet can now realise their dream and raise some much needed cash for a good cause. Scottish Huntington’s Association (SHA) is on the lookout for daredevils in the Angus area to take part in a charity sky dive. The charity is

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Italian gospel choir flies in for fundraiser

An award winning gospel choir from Italy is appearing at Glasgow’s Pollokshaws Town Hall this month to raise funds for the Scottish Huntington’s Association. The Harmony Gospel Singers are renowned group of singers and musicians directed by Stefania Mauro who have entertained audiences around the world Stefania is graduate of

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Actor wanted for HD film

The Royal Conservatoire of Scotland are currently casting for a paid role in an upcoming short film, ‘Incoming Tide’, which centres around a pair of sisters living with a Huntington’s diagnosis in the family. As an institution committed to showing authentic diversity on screen, RCS would like to hear from anyone

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