Scottish Huntington’s Association Youth Project (SHAYP) has been awarded £249,708 from The National Lottery Community Fund. The funding means SHAYP can continue to provide practical and emotional support for young people in HD families, aged from eight to 25, for a further two years. There are around 1100 people with
Local staff and families at forefront of work to help people with complex neurodegenerative condition One of the world’s first local Care Frameworks for Huntington’s Disease (HD) has been launched in Lothian. The launch at University of Edinburgh’s Chancellor’s Building, which is within the campus of the Royal Infirmary of
Local staff and families at forefront of work to help people with complex neurodegenerative condition One of the world’s first local Care Frameworks for Huntington’s disease (HD) has been launched in Lanarkshire. The launch at NHS Lanarkshire’s Kirklands Hospital HQ in Bothwell saw families affected by HD join
Local staff and families at forefront of work to help people with complex neurodegenerative condition One of the world’s first local Care Frameworks for Huntington’s Disease (HD) has been launched in Grampian. The launch in Aberdeen University’s Suttie Centre saw families affected by HD join health and social care staff
A family get together to conquer the Great Wilderness Challenge has raised around £3000 to support families impacted by the degenerative, neurological condition Huntington’s disease (HD). Tom Lister from Aultbea was joined by Oxford based brother Stephen, and grand nephew Jacob (8) for the trek in aid of the Scottish
Yesterday, we launched our new HeaDline service. HeaDline offers a new space to for you to have your say on recent health developments. The latest Huntington’s Disease health-related news, such as clinical trial developments and Q&As, will be posted on to the site and can be sent directly to your
Lisa was diagnosed with Huntington’s disease when she was 30. I only found out I had HD five years ago. It runs in my dad’s family, but he was adopted, so there are no other cases of it in the wider family, so it came as a real shock. I
Twenty nine year old Staccy was diagnosed with Huntington’s disease in 2011. My Huntington’s disease comes from my grandfather’s side of the family, who passed it on to my mum and then on to me. I was 19, I was rushed into hospital for a gene test when I was
The Scottish Huntington’s Association Youth Project (SHAYP) has launched a new range of literature designed to support children and young people living in families impacted by the degenerative neurological condition, Huntington’s disease (HD). ‘Living with Huntington’s disease; A guide for Young People Aged 8-12 and 13+’ have been specially created
