ONE of Scotland’s fittest footballers has opened up on knowing he will one day develop the rare incurable genetic brain condition Huntington’s disease – and his refusal to let it stop him living a full and healthy life for as long as possible. Cowdenbeath captain Robbie McNab, 27, discovered he
This year’s Family Gathering and AGM will take place on Saturday 4 November at DoubleTree by Hilton Dunblane Hydro, Perth Road, Dunblane. It is open to everyone whose life is impacted by Huntington’s disease, including those who have the disease or are at risk of developing it, carers and loved
Lanarkshire accountant John Moffat has taken on a whole new counting challenge that will see him do more than 1.5 million steps for families impacted by Huntington’s disease. The 55-year-old Chief Executive Officer and colleagues at Benson Wood + Co in Bellshill have been inspired to support Scottish Huntington’s Association
When civil servant Liam Anderson signed up for the London Marathon in support of the Huntington’s community, he had no idea how much it would inspire his own family. The 31-year-old tried unsuccessfully for 10 years to win a ballot place in the world-famous run – then Scottish Huntington’s Association
What an amazing time was had at the 2023 Summer Camp! This year we were joined at Lagganlia Outdoor Centre near Aviemore by 45 young people from across Scotland, our Patron Sarah Winckless, Chair of Trustees Cat Martin and Chief Executive Alistair Haw. And our Youth Service team made sure
Good luck to full-time carer Taylor Graham who is returning to the Edinburgh Fringe with his new charity stand-up show in support of people with Huntington’s disease and their loved ones. This year the 25-year-old from Edinburgh will be at the Counting House (Fringe venue 170) where he will joined
The groundbreaking course ‘Huntington’s disease: an enabling approach to supporting families’ is open for applications from practitioners involved in the care and support of people and families impacted by Huntington’s disease. The short course aims to develop greater understanding of Huntington’s disease and its impact on the people and families
Thank you so much to our incredible charity partner, Lanarkshire-based accountancy firm Benson Wood & Co. Since joining forces with Scottish Huntington’s Association in April, the staff have been very busy, including by stepping forward as headline sponsor for Dance 100 and coming along on the day to raise a
 This amazing shot won first prize in the Stronger Together in the HD Community competition organised jointly by International Huntington Association and European Huntington Association.  The competition was open to organisations and family members across the world as part of the organisations’ shared Huntington’s Disease Awareness Month campaign
Christian, a talented singer/songwriter hopes that his story will bring hope to other young people from HD families. He spoke to journalist Heather Greenaway, from the Sunday Mail, about his experiences. Excerpts from the article are below: It’s one of the cruellest and most unforgiving diseases on the planet but
