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Association welcomes Frank’s Law

Scottish Huntington’s Association (SHA) welcomes the recent change in the law concerning charges for personal care services.

From April 2019, Frank’s law (named after former Dundee United footballer, Frank Kopel) will mean, people under 65, receiving social care will get the same existing free care arrangements for those over 65.

This is welcome relief for many families affected by Huntington’s disease who are often faced with large bills in order to ensure the care and support of family members.

The Scottish Government is currently seeking assurances from Westminster that this change will not affect receipt of benefits and they are also working with the Confederation of Scottish Local Authorities (COSLA) to ensure the new law can be rolled out in time. COSLA have expressed some concern the £11m pounds set aside will not be sufficient to meet all the costs Local Authorities might need to enact the law and there is ongoing dialogue on this issue.

‘We do not know yet what the process will be for families currently paying charges for services or those who wish to apply for support, but as this information becomes available, we will let our members know,’ said SHA chief executive, John Eden.

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