Scottish Huntington’s Association (SHA) is a Scottish charity that was established by families living with Huntington’s disease (HD) in the late 1980s. Experiencing directly the dearth of services available to them, the organisation pursued the goal of setting up specialist family support services and this ultimately blossomed into the development of an extensive network of specialist services.
There are currently nine specialist HD services in Scotland; Highland, Grampian, Tayside, Angus, Fife, Lothian, Lanarkshire, Glasgow and Ayrshire. We also have three specialist youth advisors; one covering the North East, based in Aberdeen, and two the South West, based in Glasgow.
SHA also supports a network of family branches which are run by family members for family members and provide information and peer support. The groups also fundraise, are able to help people in practical ways by providing welfare grants and provide fun social opportunities. There are currently groups in Tayside, Fife, Lothian, Moray, Forth Valley, Lanarkshire, Aberdeen, Elgin, Glasgow and Ayrshire.