Aberdeen runner Steven Henderson has smashed the £4000 fundraising barrier to help families impacted by the degenerative neurological condition Huntington’s disease (HD).
Steven raised the sum on his second London Marathon in aid of the Scottish Huntington’s Association, the only charity in the country supporting families living with the condition. He completed the 26-mile course in four hours ten minutes.
‘My family has a history of HD, when I was younger my grandfather had the condition so I grew up observing him gradually deteriorating to the point that he was unable to do virtually anything for himself. My mum and my sister have also tested positive for the faulty gene and will gradually become symptomatic,’ said Steven.
‘I have seen first hand the level of care that people living with the condition need as it progresses and know the fantastic work SHA does to help, I just want to raise as much money as possible to help them with their work and have already signed up for next year’s race.’
SHA supports HD families through a national network of specialists, a world leading youth support team and its financial wellbeing service.
HD is a complex condition with symptoms that typically begin to develop between the ages of 30 and 50. It causes three main groups of symptoms: changes to thinking processes – a type of early onset dementia, loss of muscle control and involuntary movements which lead to loss of speech and swallow along with mental illness. Those impacted by HD may eventually lose the ability to walk, talk, eat, drink or make decisions and will eventually need 24 hour care. It is also hereditary with each child of those diagnosed at 50% risk developing the disease. There is no cure.
It is estimated there are around 1100 people living with HD in Scotland and up to 6000 potentially at risk.
‘Steven has been an unbelievable supporter over the years and we hope he will continue to be so for many more, we can’t thank him enough for his efforts,’ said SHA community fundraiser, Linda Winters.
Anyone interested in supporting the charity should contact Linda on 0141 848