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News 2017

Our Chair Catherine Martin talks about the importance of greater understanding of HD as we light up the Kelpies in Falkirk for HD Awareness Week

Latest News from SHA…

Great news from Jeans for Genes!

300x250 sha scottish huntingtons association Jeans-for-Genes-Day-logo-5050_v2

In good news, SHA can celebrate this month after receiving the news we will be given a grant from Genetic Disorders UK, the national charity that organises the annual fundraising day, Jeans for Genes Day.

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Neurological charity on lookout for volunteers

The only charity in the country supporting families living with the degenerative neurological condition Huntington’s disease (HD) is on the lookout for volunteers.

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Writing About HD – The Light Beyond The Shadow

valerie Gillies SHA Scottish huntingtons association light beyond hd shadow

We are delighted to announce the upcoming launch of our second annual writing competition: Writing About HD – The Light Beyond The Shadow.

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Pope welcomes Edinburgh Huntington’s disease ambassador

An ambassador for the Scottish Huntington’s disease (HD) community has met with Pope Francis to raise awareness of the condition.

Part of a worldwide HD delegation meeting his Holiness, University of Edinburgh research assistant, Dina De Sousa led a delegation from the Scottish Huntington’s Association (SHA) to the Vatican.

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World’s first National Care Framework for Huntington’s disease launched

Cabinet Secretary for Health and Sport announces £60,000 boost for additional year’s work

An event in the Scottish Parliament marking the formal launch of the National Care Framework for Huntington’s Disease (HD) has welcomed a £60,000 boost that allows the project to continue into its next phase of local implementation..

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Kelpies shed light on Huntington’s disease

scottish huntingtons association awareness week light up for hdFalkirk’s iconic Kelpies lit up to highlight the worldwide fight against the degenerative neurological condition Huntington’s disease (HD) this week.

Part of HD Awareness Week the Kelpies joined a host of prominent buildings around the world, including First Direct Area in Leeds and the BC Place stadium in Vancouver Canada as well as the Titan Crane in Clydebank in the international HD colours of purple and blue to show support for families affected by the condition.

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Titan Crane lights up to support Huntington’s disease families

titan crane to light up for hd awareness scottish huntingtons associationClydebank’s iconic Titan Crane is to be lit up to highlight the fight to find a cure for the degenerative brain condition Huntington’s disease (HD) on May 15.

The Titan Crane will join the Kelpies in Falkirk and a host of prominent buildings around in the world, including Niagara Falls, Mansion House in Dublin and Barcelona’s Grand Plaza, illuminated in the international HD colours of purple and blue to show support for families affected by the condition.

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Perth punk rockers release first album – 40 years late

The Trendies Scottish huntingtons association SHA charityForty years after splitting up, Perth’s punk prodigies The Trendies, have released their first album, all to help the band’s former singer now living with the degenerative brain condition Huntington’s disease (HD).

The band were a regular feature on the Scottish punk scene in the late seventies…

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Charity chief is bidding for book success

fifty percent novel scottish huntingtons associationThe head of one the country’s leading neurological support services has written a book, and if it’s published all his royalties will be donated to his charity.

John Eden, chief executive of the Scottish Huntington’s Association, first novel Fifty Percent? is the story of three women from three generations who are impacted by one secret, Huntington’s disease (HD).

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Good cause makes bush tucker ordeal easier to swallow

scottish huntingtons disease high school of glasgow bush tuckerThere was a variation on the lunch menu at the High School of Glasgow recently when senior pupils organised a ‘bush tucker trial’ to support people living with the degenerative neurological condition Huntington’s disease (HD).

The creepy crawly feast was just one of a series of fundraising events organised by the school’s Law House that raised over £4453 for the Scottish Huntington’s Association, the only charity in the country supporting families living with HD.

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New support platform for neurological condition

A new advice forum specifically designed for carers living in Huntington’s disease (HD) families has been launched.

Set up by the only charity in the country supporting families living with degenerative neurological condition, the Scottish Huntington’s Association, the online forum provides out-of-hours help and advice for anyone who needs support with any aspect of the condition.

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Bloggers wanted for health charity

The only charity in Scotland supporting families with the degenerative neurological condition Huntington’s disease (HD) is on the look out for volunteer bloggers.

The Scottish Huntington’s Association (SHA) wants to expand its awareness raising activities and sees a regular blog on HD related issues as an important new platform.

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Charity laughs as part of Glasgow Comedy Festival, March 24th

Raising some laughs and hopefully some cash, the Scottish Huntington’s Association SHA is hosting a charity gig as part of the Glasgow Comedy Festival this week.

Headliner for the show at Broadcast on Sauchiehall Street this Friday (March 24) is multi comedy award finalist Ross Leslie. Edinburgh based Ross has been leaving stand up audiences in stiches with his tales of raising his four children with his patient wife and also with his hit show ‘Oh no he didn’t’.

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Charity laughs as part of Glasgow Comedy Festival, March 17th

Raising some laughs and hopefully some cash, the Scottish Huntington’s Association SHA is hosting a charity gig as part of the Glasgow Comedy Festival this week.

Leicester Square New Comedian of the Year 2016, Joby Mageean, headlines at Broadcast on Sauchiehall Street this Friday (March 17).

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Charity scores top marks in satisfaction survey

According to a new survey the Scottish Huntington’s Association makes a ‘significant difference’ to the lives of people living with the degenerative neurological condition Huntington’s disease (HD).

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Lower suicidal thoughts among Scottish HD patients

People living with the degenerative neurological condition Huntington’s disease (HD) in Scotland are less likely to think about taking their own life according to a snapshot study.

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Huntington’s disease: From witch hunts to global waypoints in integrated care

The Salem witch trials of the late seventeenth century are notorious, but their connection with a devastating neurological condition is less well known.

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New fact sheets increase Huntington’s disease understanding

New fact sheets highlighting help and advice for anyone diagnosed with the degenerative neurological condition Huntington’s disease (HD) have been launched.

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Click HERE to view our news articles from 2016.

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