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March 2017 – National Care Framework goes live!

The National Care Framework for HD has been published, and can be viewed and used to improve care and support for HD families at

An event to formally recognise the launch of the Framework is scheduled to take place in the Scottish Parliament in May.

In the meantime work to develop localised versions of the Framework has now begun. The Scottish Huntington’s Association is working on local Frameworks for NHS Ayrshire & Arran, NHS Fife and NHS Grampian in the first instance, and aim to have these available by the autumn of 2017.

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